[Susan o]

Does anyone have the portable inogen oxygen. I was hoping someone from inogen could come to house and show me choices etc but apparently you have to buy it and if u don’t like u can return within 30 days.
If u use inogen please let me know if you travel with it etc. I am on 3 liters right now.
Many thanks.

[Susan o]

I am on Ofev. My Pulmongist told me an inhaler will not help. I have a terrible cough all day with lots of phlegm. I Take an awful
Lot of cough drops during the day to help with the cough.

[Susan o]

I sleep all over the place. On my back, sides, stomach n even at bottom
Of bed. I wake up several times n change positions. Sometimes I use 1 pillow , sometimes two n if cough gets bad I prop myself up in almost sitting position with 3 pillows. Not the best night’s sleep
But I when I wake up at 5 or 6 I move to the couch n get up by 7

[Susan o]

I had a very hard time with the 150 mg so my doc put me on the 100.  I did much better. At times I am still sick with the 100 for a stretch so when I spoke with my doc – he said I know my own body n how it reacts so I could try just 1 a day when symptoms got bad.  It helped .  I normally go with the twice a day but if the nausea n diarrhea get really bad for several days where I can’t really function I’ll drop to 1 a day for about 2 days .  It seems to be much better.  I make sure I have protein when taking pill etc but some days it doesn’t seem to matter.  I have had Ipf for 3 years now.