phil-seiden
@Phil Seiden
•
Joined Sep 2019 •
Active 4 years ago
Biography
Name | Phil Seiden |
Nickname | phil-seiden |
Year of Birth | 1961 |
Gender | Male |
Location | North Central Florida |
Relationship | Patient |
Short Bio | EARLY diagnosis of ILD, Fibrosis, Bronchiectasis, and Lupus in 2014. Autoimmune drug regimen kept the progression “grossly stable” (e.g. CO diffusion of 60% more or less) for four years. In 2019 a nasssty lung infection kicked everything into high gear for six months, and has left me with a CO diffusion of 24% and dependent upon high-flow oxygen 24/7. |
Type of Diagnosis | PF of known aetiology |
Treatment / Medical Facility | University of Florida, Gainesville |
Current medication regimen | CellCept, Plaquenil, Prednisone, etc., etc., ad nauseum. |
Lung transplantation status | currently in evaluation process |
Supplemental Oxygen | yes |
Are you currently taking an anti-fibrotic medication? | no |
How did you find us? | Other |
How long have you or the person that you are caring for had PF? | 5 years |
Privacy Policy and Terms of Use | I agree |