Biography

Name

Phil Seiden

Nickname

phil-seiden

Year of Birth

1961

Gender

Male

Location

North Central Florida

Relationship

Patient

Short Bio

EARLY diagnosis of ILD, Fibrosis, Bronchiectasis, and Lupus in 2014. Autoimmune drug regimen kept the progression “grossly stable” (e.g. CO diffusion of 60% more or less) for four years. In 2019 a nasssty lung infection kicked everything into high gear for six months, and has left me with a CO diffusion of 24% and dependent upon high-flow oxygen 24/7.

Type of Diagnosis

PF of known aetiology

Treatment / Medical Facility

University of Florida, Gainesville

Current medication regimen

CellCept, Plaquenil, Prednisone, etc., etc., ad nauseum.

Lung transplantation status

currently in evaluation process

Supplemental Oxygen

yes

Are you currently taking an anti-fibrotic medication?

no

How did you find us?

Other

How long have you or the person that you are caring for had PF?

5 years

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