Pulmonary Fibrosis News Forums | Paulette Daniels | Activity https://pulmonaryfibrosisnews.com/forums/members/paulette-daniels/activity/ Activity feed for Paulette Daniels. Tue, 21 Apr 2026 01:00:26 -0500 https://buddypress.org/?v=2.20.0 en-US 30 hourly 2 4782f0a0a82cdf2f80ecbb26bf887c08 Paulette Daniels replied to the discussion Digital Clubbing in Pulmonary Fibrosis Patients in the forum Welcome Lounge https://pulmonaryfibrosisnews.com/forums/forums/topic/12231/#post-28393 Thu, 20 May 2021 21:27:32 -0500 Reply to Digital Clubbing in Pulmonary Fibrosis Patients

I don’t have clubbing in my fingers (I don’t think), but for years a couple of my nails have grown weird, turning down at the ends in the middle.  I have wondered if this is clubbing.  Also, I thought I had an ingrown toenail on my big toe, but its not.  It did hurt.  I suppose it could be clubbing.

]]> ff0b978f7ffa353d3d4da63eaf8276f9 Paulette Daniels replied to the discussion Leg muscle weakness side effect of OFEV in the forum Welcome Lounge https://pulmonaryfibrosisnews.com/forums/forums/topic/leg-muscle-weakness-side-effect-of-ofev/#post-28110 Tue, 20 Apr 2021 21:07:42 -0500 Reply to Leg muscle weakness side effect of OFEV

I can hardly walk more than about 15 steps for the last 3 weeks.  Never thought it might be the OFEV.  I have only been on it for about 3 months.  Doctor as usual, has no idea and no suggestions to help

 

]]> 4e34761107b12b7882013a49a7295fb5 Paulette Daniels replied to the discussion Has anyone stopped taking Esbriet? in the forum Esbriet (Pirfenidone) https://pulmonaryfibrosisnews.com/forums/forums/topic/has-anyone-stopped-taking-esbriet/#post-27135 Wed, 03 Feb 2021 00:39:17 -0600 Reply to Has anyone stopped taking Esbriet?

I took Esbriet last year for several months. At first it was fine, but as the dosage increased, I had more and more side effects – passing out, vomiting, fatigue, nausea, headaches, rashes, loss of appetite and more. When I was at full dosage, I could no longer tolerate it. My pulmonologist kept giving me drugs to counteract the side… Read more

]]> de3e8097bf2761a6c4988ed80e491c9b Paulette Daniels became a registered member https://pulmonaryfibrosisnews.com/forums/activity/p/20587/ Fri, 12 Jun 2020 00:04:04 -0500 1 8564090b249bd20d7c4da4785e541441 Paulette Daniels updated their profile https://pulmonaryfibrosisnews.com/forums/activity/p/20586/ Thu, 11 Jun 2020 23:57:06 -0500 0