@peter
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Charlene Marshall posted a new activity comment 3 years, 5 months ago
Good Morning @peter,
Thank you so much for the warm Christmas wishes – sending them right back to you. Wishing you nothing but the very best for 2020 🙂
As for your weight loss question, yes, I would say it is something very common with IPF patients. Of course I am no physician, but there are a couple of things I’ve been told about weight loss…[Read more]
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Charlene Marshall posted a new activity comment 3 years, 6 months ago
So sorry to hear this @peter! Getting up/down from bed or a chair to standing can be tough and it is unfortunately something we all need to do, so I can imagine the switch is frustrating. Glad to hear you’re doing okay otherwise though. Hang in there! Happy holidays to you and your family.
Charlene. -
Charlene Marshall posted a new activity comment 3 years, 6 months ago
Back to you @peter – nice to hear from you! I am just slowly emerging from a terrible flu virus so I am a bit behind on replying. Stay well 🙂
Charlene. -
Denny posted an update 3 years, 9 months ago
@Peter Try the WEI herbs! They work and could get you off oxygen.
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Charlene Marshall replied to the topic How do you feel? in the forum Diagnosis Information and General Questions 3 years, 9 months ago
Thanks for your reply @peter! Glad the air quality is good as far as you know, that is important. I also struggle with the steam of a shower, causes me to cough like crazy! Remember the <89 oxygen saturation can cause damage to your other organs, so please be careful …. I won’t nag any more, promise Lol. 😉
Take care,
Charlene. -
Cynthia replied to the topic How do you feel? in the forum Diagnosis Information and General Questions 3 years, 9 months ago
I’m surprised your doctor waited so long to put you on oxygen. It sounds like you might have needed it earlier. I was put on oxygen (2L) for exertion and sleep right after the diagnosis in May. I can definitely feel the difference. Even walking around a supermarket makes me dizzy and tired if I don’t use it.
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Charlene Marshall posted a new activity comment 4 years ago
Hi @peter, this is a good question, although hard to answer I think because all of us seem to progress so differently with this disease. I think that is what makes it so difficult for physicians; the course of the disease progression isn’t the same from patient to patient. Anyway, I don’t have an answer to your question but I wanted to share…[Read more]
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Charlene Marshall posted a new activity comment 4 years, 2 months ago
Hi @peter, each person is entitled to try the medications for their disease and how they measure success is very individualized. Similarly, you’re of course welcome not to try Ofev but please be mindful that some people are indeed finding the medications beneficial.
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hi charlene,I did try ofev for 7 weeks and it made me sick.Maybe these forums are just not for me.I am retired army and have a backgreound in lawenforcement.I cant deal with maybe or could ……I want facts and or proof.I am not a guineapig.We are giving a lot of false hopes .Maybe thats human nature but Nothing here is a sure shot.So , I will…[Read more]
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Hi Pete,
Thanks for getting back to me on this. No need to apologize in anyway or explain the importance of your needing evidence-based data/research or needing proof; I completely understand. Everyone is entitled to their opinions on the forums, please don’t take my message above as otherwise, it just is important to be respectful in the…[Read more]
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hey Charlene
You make a great Diplomat.You should be an Ambassador.lol
thanks
Peter
peter
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Charlene Marshall posted a new activity comment 4 years, 2 months ago
Hi @peter, you’re right – it doesn’t sound like there are many differences between the two FDA-approved drugs. From what I understand, it is a patient’s lifestyle and health history that might determine which one is more suitable than the other but I can’t be sure on that. I was only recommended Ofev, and never tried Esbriet. I did use Symbicort…[Read more]
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Charlene Marshall posted a new activity comment 4 years, 2 months ago
Hey @peter – welcome Army Pete 🙂 Your name is a popular one!
