piet-potgieter1576988077
@Piet Potgieter
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Joined Dec 2019 •
Active 3 years ago
Biography
Name | Piet Potgieter |
Nickname | piet-potgieter1576988077 |
Year of Birth | 1944 |
Gender | Male |
Location | South Africa |
Relationship | Patient |
Short Bio | Diagnosed January 2017. On Esbriet generic Pirfenex since June 2017. Supply running out in three days’ time and not possible to import any more as Esbriet has become available at an unaffordable price and medical aid will not pay. My condition stabelized in the 2.5 years I have used the generic. |
Type of Diagnosis | IPF |
Treatment / Medical Facility | Six monthly visits to pulmonologist |
Current medication regimen | Esbriet generic Pirfidione (Pirfenex from Cipla, India) |
Lung transplantation status | considering later |
Supplemental Oxygen | no |
Best advice for PF symptom management | Stay active as far as possible and lose weight if it is a problem! |
Are you currently taking an anti-fibrotic medication? | yes |
How did you find us? | PF News Website |
How long have you or the person that you are caring for had PF? | 3 years, but probably longer before I was diagnosed. |
Privacy Policy and Terms of Use | I agree |