Pulmonary Fibrosis News Forums | Ray Hastings | Activity https://pulmonaryfibrosisnews.com/forums/members/ray-hastings/activity/ Activity feed for Ray Hastings. Mon, 27 Apr 2026 14:28:41 -0500 https://buddypress.org/?v=2.20.0 en-US 30 hourly 2 8d8158f2c180db82ac6cc70c9846b633 Ray Hastings posted a new activity comment https://pulmonaryfibrosisnews.com/forums/activity/p/4393/#acomment-15338 Sun, 22 Sep 2019 19:17:26 -0500 hi charlene, are you aware of were tn the us that provides laser tremrnts fo pif?

In reply to - Ray Hastings became a registered member ]]> 1d96a1d1dc1eaccbf9dd932ed04e2a32 Ray Hastings replied to the discussion Receiving Multiple Lung Transplants in the forum Lung Transplantation https://pulmonaryfibrosisnews.com/forums/forums/topic/receiving-multiple-lung-transplants/#post-18919 Fri, 03 May 2019 20:08:47 -0500 Reply to Receiving Multiple Lung Transplants

this is in regards to travel.  you will have a difficult time taking 02 bottles on a plane. 02 concentrators are acceptable are allowed.  there are companies online that rent scooters for use on ships and at some land based locations. they deliver and pick up from the location so it is easy to get and us them.  it is best to send an email to… Read more

]]> 817434daeeb7427f29708b36c0c37023 Ray Hastings posted an update: a comment re another post.BBT-877—Bridge […] https://pulmonaryfibrosisnews.com/forums/activity/p/11903/ Fri, 03 May 2019 19:30:27 -0500 a comment re another post.BBT-877—Bridge Biotherapeutics’ New IPF Drug Candidate Wins FDA Investigational Approval

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In a victory for South Korea-based Bridge Biotherapeutics, its new best-in-class IPF drug candidate BBT-877 has been granted Investigational New Drug status for Phase I… Read more

]]> 0 a5bd9bd56ec95a9a9a5e318de059e78d Ray Hastings replied to the discussion Portable oxygen in the forum Diagnosis​ ​Information​ ​and​ ​General​ ​Questions https://pulmonaryfibrosisnews.com/forums/forums/topic/portable-oxygen/#post-14411 Thu, 13 Sep 2018 16:08:07 -0500 Reply to Portable oxygen

I have the simply go anti works well. i bought it several years ago. it goes from 1 to 6 litters and works well 24/7. my wife and i travel a lot and the airlines allow it onboard and you can use onboard. it is best to register it with the airline before you travel.

bought mine online but it would be better to buy local, if possible. i am… Read more

]]> 86e1711db299bd1d0f007fae1566f719 Ray Hastings replied to the discussion Starting Esbriet in the forum Esbriet (Pirfenidone) https://pulmonaryfibrosisnews.com/forums/forums/topic/starting-esbriet/#post-13808 Tue, 07 Aug 2018 15:49:00 -0500 Reply to Starting Esbriet

i am starting my3rd year on Esbriet . the things i have discovered is

(1) never take the pills on an empty stomach. (2) it its ok to miss a dose occasionally without starting over

another resource when your insurance turns down your request for coverage is your state’s insurance commission.  my experience in insurance coverage comes from  15… Read more

]]> 0c654b1148d1345c0b2d57d0a5db6a0c Ray Hastings replied to the discussion How Do You Wear Your Oxygen Cannula? in the forum Welcome Lounge https://pulmonaryfibrosisnews.com/forums/forums/topic/wear-oxygen-cannula/#post-13667 Sun, 29 Jul 2018 00:14:44 -0500 Reply to How Do You Wear Your Oxygen Cannula?

hi chuck
I wear mine with the tubing in front of me and it works for me.I tried it running thru my shirt and down but the tubing can get crimped, I some times lose the cannula during the night but my machine beeps and wakes me ip.

good luck

]]> 7f84104e428d002af76dbe41fa2fa02c Ray Hastings replied to the discussion Where do you live, receive care, and are you in a local support group? in the forum Polls & Quizzes https://pulmonaryfibrosisnews.com/forums/forums/topic/where-do-you-live-receive-care-and-are-you-in-a-local-support-group/#post-13666 Sun, 29 Jul 2018 00:07:06 -0500 Reply to Where do you live, receive care, and are you in a local support group?

Charlene, the VA now has a video setup where patients can communicate with their providers. A good many providers also have similar.

I live in North Carolina and my main provider is the Raleigh Durham VA. i Had a problem getting the VA pharmacy to provide Esbert when it was fist prescribed. We were living in Connecticut at the time and… Read more

]]> 860985c1105c55e3bfd320e12bb6f812 Ray Hastings became a registered member https://pulmonaryfibrosisnews.com/forums/activity/p/4393/ Sat, 28 Jul 2018 23:45:48 -0500 1