[rebecca-smith]

Also, baricitinib was offered to me to continue upon discharge after my acute bout of COVID. Stupidly, I refused it based on price. But I thought I was getting better, too.
Then the next week I called 911 and needed intubated. So what to think?

[rebecca-smith]

Yes, I received the Baricitinib while acutely hospitalized with COVID. (Although I’d already been sick 7 days before seeking care- my fault.) I went home from hospital with O2 but returned within the week requiring mechanical ventilation and the potential diagnosis of Fibrosis. I was on high dose of Prednisone for 6 months after because every attempt to wean, I’d get worse. Now. Ive successfully weaned to Cellcept.

What drew me to your post was that you’d mentioned that your scarring was on bottom of lungs. This is how mine is. It baffles my doctors because they said this isn’t usually how COVID presents. They really have little experience with COVID leading to Fibrosis ILD. (Probably little experience with ILD/Pf from any cause.)I’m going next month to Vanderbilt.
I had COVID last May. On Vent in June. Several other hospitalizations over the summer. My DLCO has been stable at 31-32 since October. My activity very limited. 59 years old. No preexisting risks. Was vaccinated .

[rebecca-smith]

I see this thread is from 2021, but I’m desperate for input/information.
My story started in May. I’d been very short of breath while out of town on vacation. COVID didn’t cross my mind for a week. I had a false negative. But I drove home to my hospital. 10 days into this. COVID positive. Lungs horrible per CT.
this is now 2 1/2 months later. No change in CT. “No improvement in scarring”.
I am absolutely miserable. At rest with 2l oxygen I’m 94% sat. But the minute I move my pulse jumps and my sats drop.  A trip to the bathroom, (with 4-5 l oxygen) my pulse is 130 and sats drop to 70’s.
how are you all doing? What kind Of medical treatment,nebulizers, inhalers have you been on?

Not much info here on Pulmonary Fibrosis caused by COVID. But the end result is most probably Pulmonary Fibrosis.

I’ve been on prednisone at home. Just tapered off and now back in hospital getting IV steroid and steroid news.