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Miltont joined the group
Research and Development 11 months, 3 weeks ago
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Mark Koziol replied to the topic New treatments in the forum
Research and Development 11 months, 3 weeks ago
Hello Bert, thank you for sharing. I think I speak for all of our members wishing you good luck and this clinical trial is successful. Please keep us updated. Best wishes, mark.
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Kathy Phillips posted an update in the group
Research and Development 1 year ago
Jim Dawson I’m anxious to read more about Mycophenolate Mofetil. My husband is unable to take Esberit because of the nausea and other side effects. Our doctor is at Duke so I will have him write her about his medication. Toby is doing pretty well with managing his cough with oils he rubs on his lungs and throat. He’s been a little more…[Read more]
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Kathy Phillips joined the group
Research and Development 1 year ago
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Jerry Genesio posted an update in the group
Research and Development 1 year ago
A new study by Iqra Mumal, MSc, published in the American Journal of Respiratory Cell and Molecular Biology” suggests that statins, widely prescribed to lower cholesterol levels and prevent heart disease, may be an effective treatment for IPF. I was in one of the original Lipitor studies for 5 years back in the 1990s. When it ended, I learned I’d…[Read more]
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Jerry Genesio joined the group
Research and Development 1 year ago
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Donna Coyle joined the group
Research and Development 1 year ago
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Jim Dawson posted an update in the group
Research and Development 1 year ago
I just want anyone who is on Esberit or Ovey to know I have been on Mycophenolate Mofetil (6) per day. I tried both Ovey and Esberit, but my system couldn’t tolerate them. This pill I am now taking is for people who have had lung transplants primarily. I have not had a transplant, but my doctor decided to try it. My coughing has been reduced by…[Read more]
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Jim Dawson joined the group
Research and Development 1 year ago
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Mark Koziol replied to the topic New treatments in the forum
Research and Development 1 year ago
Hello Joe, I am right there with you Joe. I hope it happens sooner rather than later. I interviewed a pulmonary disease doctor/researcher. Here is the link. He offers hope.
https://pulmonaryfibrosisnews.com/forums/forums/topic/an-interview-with-a-pulmonologist/ -
joe hick replied to the topic New treatments in the forum
Research and Development 1 year ago
Thanks Mark. Looking for that study that will come up with a cure. Just hoping and praying
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Mark Koziol replied to the topic New treatments in the forum
Research and Development 1 year ago
Hello Mal, thank you for sharing the article. Very much appreciated! Mark
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Malcolm Mann replied to the topic New treatments in the forum
Research and Development 1 year ago
Hi Joe & Mark
While this scientific paper doesn’t deal with medical treatment of IPF it does give a clear overview of available antifibrotic drugs available now and their side effects.
https://journals.sagepub.com/doi/full/10.1177/1060028019862497
cheers Mal
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Yvonne joined the group
Research and Development 1 year ago
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Mark Koziol replied to the topic New treatments in the forum
Research and Development 1 year ago
Hello Joe, here is a link that you can use to find a clinical trial. https://trials.pulmonaryfibrosis.org/
Here is another link I think you will find valuable as well. https://www.pulmonaryfibrosis.org/life-with-pf/clinical-trials
mark
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joe hick started the topic New treatments in the forum
Research and Development 1 year ago
Are there any know studies going on for the cure of IPF? If so where can I investigate?
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Ginny joined the group
Research and Development 1 year ago
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Luis Pernia posted an update in the group
Research and Development 1 year ago
Greetings to all. I got this information that can be helpful. They can translate it into English.
https://elmedicointeractivo.com/una-terapia-con-hormona-tiroidea-cura-la-fibrosis-pulmonar/ -
Luis Pernia joined the group
Research and Development 1 year ago
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Anne joined the group
Research and Development 1 year ago
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