Biography

Name

Beckie

Nickname

beckie

Year of Birth

08/01/1954

Gender

Female

Location

PA

Relationship

Caregiver

Short Bio

My husband was diagnosed in July 2018. He has been seen by a specialist and has had testing to be put on the lung transfer list. He just had a stent put in to take care of a heart blockage. He will be on Plavix for 6 months and will then be listed. His heart cath was done on Monday. He did well, but his cough has been raging. He takes Delsum 12 hr, but it hasn’ been helping the last couple days. He is so exhausted and sore from coughing and I can’t do anything. It is so heartbreaking to watch and feel so helpless.

Type of Diagnosis

IPF

Treatment / Medical Facility

Penn State Hershey and Temple Hospital in Philadelphia, PA

Current medication regimen

No longer on Ofev and refused to go on the other. He had a terrible reaction to Ofev( diarrhea, exhaustion, failure to thrive, etc). He was hospitalized for 15 days because of it.

Lung transplantation status

eligible

Supplemental Oxygen

no

Are you currently taking an anti-fibrotic medication?

no

How did you find us?

PF News Website

How long have you or the person that you are caring for had PF?

8 months

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