@charlene-marshall Related to the desire for normalcy you touched on something that just caught me about a month and a half ago. You and I were diagnosed as having IPF in 2016. And I am now quite sure I had an exacerbation that surfaced in late Feb – early Mar. I cannot be sure as I spend my winters in Florida, without a pulmonologist, and […] View
Thanks so much for writing to me, and sharing a bit about your story. Yes indeed, it looks like we were diagnosed with having IPF just within a few weeks of another. I’ll never forget April 7 2016! I’m really sorry to hear of your suspected exacerbation, they are scary and mine in May of 2017 left me fearful of this…[Read more]
Hi Charlene – Yes your response clears up my confusions and concerns and I thank you very much. Yes I am on higher deliveries of O2 and quite honestly now I wear my oxygen tubes whenever I can. I used to not use it until my sats dropped below 90. Now I wear it a lot and feel better for doing so. I am returning to the Midwest US next week and doing…[Read more]
Thanks so much for you reply, I am really glad my response helped a little bit 🙂
I am similar to you, and although I used to hate wearing my oxygen, now I can tell a big difference in how I feel overall when I am wearing it so my preference is indeed to have it on. Like you, I feel better when I do. I hope your return to the midwest…[Read more]
Hi @rjmo3comcast-net, I’m so glad you’ve joined us! My diagnosis was early 2016 as well and although I wasn’t ready right away, I was so happy to find this supportive platform where others are going through I am. I find it very helpful to be part of this community, so I do hope you find it helpful as well. Please feel free to write any of your…[Read more]
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