Robert

Thanks for asking about my dad Steve.  I had a conversation with my dad about a year ago that had a profound affect on me. I will try to not make this too lengthy.

When they passed out the parents, I struck gold!  Mom and dad were always very supportive for me and my two brothers. My older brother is also a doctor. My younger brother is a p…[Read more]

Hi Charlene and Josie yes the weather is bad very cold I live just north of Toronto in Caledon , no Josie the Doctor didn’t seem to think the IPF had a connection to my TB scars but she really didn’t know for sure.Keep warm.

Hi Bill,

I am all for a good sense of humor!!

I’m so sorry to hear about your condition. It sounds like you are managing quite well. My dad was on 10L as well and could barely do anything for himself, so you are doing great! Talking definitely winded him, so while you can make a joke about just moving the lips, unfortunately it is true. That…[Read more]

Hi Josie I too had TB once when I was 12yrs old again at 17 am now 79. I was diagnosed with IPF in June 2016.by Pulmonary Biopsy.Lately I have not been feeling very well,short of breath and a lot of coughing,maybe due to the weather it is very cold here in Canada.anyway maybe your Dr.will suggest doing this. Hoping this will help.

Hey Charlene –  like your foodstuff.  We have some ladies at my church make a cashew cheese (many recipes) it is pretty tasty. I have a couple of creaker recipes I need to try some one day.  Nothing I see on the grocery shelves seems totally safe anymore…Steve

Hi Charlene,

I thank you for moderating this forum (At least that is my impression). When my dad was diagnosed there was so little information about personal experiences, and there still is. I was able to find some great information via this forum and site in general, so thank you again, and I am sorry that you are battling the disease as well. I…[Read more]

My name is Thom.  But for now call me confused.  I went to Yale medical center and was prescribed ofev

I’ve had the med two weeks but was advised by my local treating  doctor not to take it yet

I’m not sure why

So who do I listen  to!  Reply here or to me.  I’m ok either way.   [email protected]

Thanks for listening!

Hello everyone.  The Egyptian study for laser for COPD was done by one of Americas top Scientist Mr Seyed, he has been recognized by George W Bush and Obama and his research office is at Georgia Tech.  You can find the laser study by googling ” Egyptian laser study copd”  I live in Florida and the cost from my chiropractor is $40 a visit. I had to…[Read more]

Dr Hall is a chiropractor in California that has IPF, he has a web site ipflaserstudy.com  I had two treatments last week at a chiropractor here in Florida cost $40 a treatment and two this week with one planned Friday. The Egyptian study was done in Cairo by one of our country’s top scientist recognized by George Bush and Obama, his office for…[Read more]

Watching this one. Something that helps me is ‘Bag Balm’ that I find in women’s makeup and beauty supplies. It is very thick to apply so takes some work. I put it on my hands because they crack and bleed and it usually works.

Hi Ray,

just a slight correction in your mail above. René is not a she but a he. If it were a she the name would have been spelled Renée. Hahaha.

rené

Hi Ray,

Thank you for your long response  – yes I’m unfortunately aware of no late dinners and no chocolate!  Also no peanut butter fudge!  My GI doctor started me on Gaxalant and prescription-strength Zantac which seems to have helped.  The only problem is that I take the Zantac at bedtime and if my stomach decides to give the old heave ho, t…[Read more]

Thank you. I’m really nervous but also need the appointment. Just been in deep prayer for healing and help. I’m hoping for the best ughhh. This season of my life is tougher than any ever. Have a good night I’ll swing back around hopefully with good news etc.

Hi Charlene,

Thanks for your reply. He was only diagnosed with IPF 4 weeks ago and he was waiting for some results back/ plan of action from the pulmonologist on the 17th dec. So he wasn’t on any oxygen but we all thought he probably would have to start the oxygen after his results came back. However he went to the doctor on Monday and they r…[Read more]