After a devastating failed lung transplant experience for my mother at MGM Healthcare (Chennai, India), I wanted to share our family’s difficult journey to help others navigating complex healthcare decisions. Losing a loved one is never easy, but my hope is that by providing insights into our challenges, setbacks and lessons learned,…

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As per the doctors, the tracheastomy tube is preventing aspiration and also providing an easy way to remove airways secretion as my coughing power is not enough to take out the phelgm which may cause infection if left inside. The tube will be removed in a few days and afterwards I have to cough out any secretions building inside the airways.

I had my bilateral lungs transplant successfully done on 25th October 2022. I am in recovery phase with a tracheastomy tube still on my neck. I am now 50 days post transplant with no oxygen requirement anymore,  but still not able to walk a few meters independently or without getting exhausted. I am 58 and not sure if recovery is usually… Read more

Thank you everyone for sharing your experience. This is very encouraging!

Hi everyone, I hope you all are doing well and keeping safe. Lungs transplant nowadays seems to be the last resort for many patients who are dealing with advanced stage lungs disease. I have been diagnosed with advanced ILD in May-2022 and going for bilateral lungs transplant soon. Do we have active members in this forum who have gone… Read more