Pulmonary Fibrosis News Forums | Russ Sukut | Activity https://pulmonaryfibrosisnews.com/forums/members/russ-sukut/activity/ Activity feed for Russ Sukut. Thu, 23 Apr 2026 22:55:40 -0500 https://buddypress.org/?v=2.20.0 en-US 30 hourly 2 cffd3791b78cf9fbb662202c312151ee Russ Sukut replied to the discussion How are long-term (4+ years) OFEV users doing? in the forum Ofev (Nintedanib) https://pulmonaryfibrosisnews.com/forums/forums/topic/how-are-long-term-4-years-ofev-users-doing/#post-31364 Thu, 17 Mar 2022 18:45:41 -0500 Reply to How are long-term (4+ years) OFEV users doing?

I stared OFEV in September 2016. I began t experience side effects around Christmas of that year. Mostly severe lower bowl discomfort at night, some diarrhea, but not problematic. I put up with this discomfort for 15 months. At that time after consulting with the OFEV nurse my dosage was reduced to 100 mg. per day. Since going on the 100… Read more

]]> 1da7216cc49e456bc863e5d13ace68b8 Russ Sukut replied to the discussion Emergency Preparedness When Using Supplemental Oxygen in the forum PF Life: 50+ https://pulmonaryfibrosisnews.com/forums/forums/topic/emergency-preparedness-when-using-supplemental-oxygen/#post-16614 Sat, 09 Feb 2019 19:01:30 -0600 Reply to Emergency Preparedness When Using Supplemental Oxygen

Living in a rural area of Vancouver Island we experience frequent power outages during our winter storms.  I and most people living in these areas small gas generators to supply basic emergency power.

Russ.

]]> 6fbf45c8db2eadaac8af4252cc46d279 Russ Sukut became a registered member https://pulmonaryfibrosisnews.com/forums/activity/p/3898/ Tue, 03 Jul 2018 17:06:08 -0500 1