sandy2184
Biography
Name | Sandy |
Nickname | sandy2184 |
Year of Birth | 03-06-1958 |
Gender | Male |
Location | Florida |
Relationship | Family |
Short Bio | My husband was diagnosed with PF two years ago and was put on Ofev but then we changed Pulmonologist and the new one took him off the Ofev as he said it was ARDS he had, ever since he has declined and we eventually went to a Pulmonology specialist at a reputable hospital who told us it was definitely PF and had progressed a lot since his last scan and needs to definitely go back on Ofev which takes a while, and he will need a transplant eventually. l worked in a transplant unit and it’s not that easy to get one as you probably know. I’m upset as l worry taking him of the Ofev for so long may have caused his progression. I’m so worried and feel so helpless, we have no family living close or friends, can anyone give me some advice please. I am grateful l found this site. Thank you |
Type of Diagnosis | IPF |
Treatment / Medical Facility | Trying to reapply for Ofev/ Tampa General |
Current medication regimen | Just inhalers till we can get back on Ofev. |
Lung transplantation status | to be determined |
Supplemental Oxygen | no |
Are you currently taking an anti-fibrotic medication? | no |
How did you find us? | PF News Website |
How long have you or the person that you are caring for had PF? | Two years. |
Privacy Policy and Terms of Use | I agree |