Biography

Name

Sandy

Nickname

sandy2184

Year of Birth

03-06-1958

Gender

Male

Location

Florida

Relationship

Family

Short Bio

My husband was diagnosed with PF two years ago and was put on Ofev but then we changed Pulmonologist and the new one took him off the Ofev as he said it was ARDS he had, ever since he has declined and we eventually went to a Pulmonology specialist at a reputable hospital who told us it was definitely PF and had progressed a lot since his last scan and needs to definitely go back on Ofev which takes a while, and he will need a transplant eventually. l worked in a transplant unit and it’s not that easy to get one as you probably know. I’m upset as l worry taking him of the Ofev for so long may have caused his progression. I’m so worried and feel so helpless, we have no family living close or friends, can anyone give me some advice please. I am grateful l found this site. Thank you

Type of Diagnosis

IPF

Treatment / Medical Facility

Trying to reapply for Ofev/ Tampa General

Current medication regimen

Just inhalers till we can get back on Ofev.

Lung transplantation status

to be determined

Supplemental Oxygen

no

Are you currently taking an anti-fibrotic medication?

no

How did you find us?

PF News Website

How long have you or the person that you are caring for had PF?

Two years.

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