Hi, I would like to know why dont we just use ECMO instead of ventilators, as ventilators cause fibrosis sometimes and ECMO uses protective lung ventilation instead.

Sorry for the late response, unfortunately my old man passed away. Drs made a decision to withdraw ventilator as he was just working harder and harder, and after 16 days, they withdrew his ventilator, as he wasnt improving.

He was initially put on High Flow Oxygen after extubation, as a last ditch attempty, but even that made things… Read more

Essentially, I am trying to figure out how this disease progresses, I understand it is largely variable based on reading people’s experiences.

But how did you find you had fibrosis? Was it a accidental check up at gp? Or was it a major acute exarcerbation? If so, was there scarring in lungs present before you had the episode, and the… Read more

My question is his RR on ventilator is fluctuate between 35-40. But his RR health monitor says more like 20-25.

I have a few questions re ventilator settings. My dad is in hospital with fibrosis on ventilator. His ventilator setting says 40 RR respiratory rate that is but his vital signs  monitor that his oxygen BP stats etc says RR  25. Drs say he is breathing too hard. But his vitals seem fine? Feel free to correct me.

I would like to know what are the odds of surviving ventilation from fibrosis.