steve-blake
Forum Replies Created
-
I am 75 years old and was diagnosed with IPF in 2012. Earlier this year I had shoulder and neck pain and my Pulmonologist referred me to Rheumatologist. I was diagnosed with an autoimmune disease known as Polymyalgia Rheumatica which is treated with prednisone. Once treatment was started I had immediate relief.
-
I have IPF. I was diagnosed in 2012 and began taking Ofev in 2018. I went on oxygen for sleeping in 2018 and use it if active and exercising. I too received the 3-5 year and it was scary. What you have to understand is that everyone is different and there is no way to predict. I know totally ignore the 3-5 year guestimate and feel great and plan to keep on for many more years.
-
My progression has been very slow. I did not take any medication until 2018 and also was prescribed oxygen at 2L for sleeping at night. I only use oxygen in the daytime if active, exercising or out and about. Also started Ofev at the same time. I also have Asthma and Polymyalgia Rheumatica. Prednisone for the Poly, Symbicort, Singulair and Ipratropium Bromide/Albuterol Sulfate inhalation solution for the Asthma. Prilosec for GERD. I tell people I am a walking drugstore. I walk 30 minutes a day on the treadmill using 5L of O2.