My husband had covid pneumonia and the resulting Cytokine storm of inflammation. We both decided at the beginning of the pandemic that neither of us wanted to be on a ventilator. We got it at the same time. We both just had fatigue and sore throats, no other symptoms (we had omni version of covid). However, as my symptoms were gone after…

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Hi Ruth,

The Mayo Clinic site has an excellent and very active forum for caregivers:

https://connect.mayoclinic.org/group/caregivers/

DJ, I know exactly how you feel. I am not ready to forgive either. Not one of my husband’s many doctors who have “treated” him for the past year have called or sent an email to offer any condolences. Medicine is just a for profit business to them.

Interesting. I offered to donate my husband’s lungs so they could study what Covid did to them, but nobody was interested.

You are so right. They do not want a cure.

I’m glad to hear you are doing better. Unfortunately, my husband died from retaining too much CO2.

He didn’t necessarily improve but he was able to lower his prednisone. He was a diabetic and the prednisone was causing sky high blood sugar readings. He had no side effects from cellcept. Even before Covid he was taking 5000 units of vit. D daily as well as C, B12, zinc, and Quercia in.

Yes, but that stopped after he went home from the hospital. Just conventional treatment. No thinking outside the box. He died last Wednesday. He suffered greatly with his breathing due to the PF and inflammation after being “saved” from COVID. He would have been better off dying from Covid.

I read it. I do think controlling chronic inflammation is the key to treating most diseases including cancer and autoimmune diseases. Did you read the article in Pulmonary News about aspirin being a possible treatment for pulmonary fibrosis?

Thank you Stephen for your research. I had come across a couple of those articles.  I just wonder why the mainstream press has never publicized the advantages of using baricitinib.  I do wish my husband had received it sooner in the hospital and received the full 14 days of it rather than them stopping it after 7 days when he left the… Read more

Thank you for your reply, Rebecca. Your experience mostly mirrors my husband’s. Are you in the United States? His pulmonologist said that the FDA would not approve baricitinib to be given after he left the hospital. This was in February 2022–maybe they changed their policy by the time you got COVID? His pulmonologist also will not prescribe… Read more

What is LOX? How does it differ from e tanks?

Those with PF secondary to COVID pneumonia–did anyone receive the drug baricitinib in the hospital?

My husband was hospitalized in February 2022 with COVID pneumonia. He almost died. The FDA allows emergency use authorization (EUA) for baricitinib in treating COVID pneumonia only while in the hospital. It is an older drug used to treat RA.… Read more

Hi Sallad,

My husband was diagnosed with PF 2 months after having COVID in February 2022. He has seen several pulmonologist and they all say they do not know much about PF secondary to COVID 19. No one will tell us if the scarring will progress. He has been hospitalized 5 times since having COVID. When they try to taper his Prednisone,… Read more