Pulmonary Fibrosis News Forums | scherry | Activity https://pulmonaryfibrosisnews.com/forums/members/scherry/activity/ Activity feed for scherry. Wed, 22 Apr 2026 02:03:37 -0500 https://buddypress.org/?v=2.20.0 en-US 30 hourly 2 78c4303f536df91844411ef980aac7fa scherry replied to the discussion Shower with nose cannula in the forum PF Communities https://pulmonaryfibrosisnews.com/forums/forums/topic/shower-with-nose-cannula/#post-39419 Fri, 10 Apr 2026 19:42:14 -0500 Reply to Shower with nose cannula

Hi I shower with it on and do hair and face as well. I stand with my back to water for my face and gently go around and under the sides of the cannula. I have also used in shower and just take it off briefly to wash face and hang cannula over faucet. You could also use a self attaching hook higher up that keeps water out of it. So many things…

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]]> 1c14a8306cb1f1eeb4c53b0ccaca6089 scherry replied to the discussion How to stay active with PF in the forum Diagnosis​ ​Information​ ​and​ ​General​ ​Questions https://pulmonaryfibrosisnews.com/forums/forums/topic/stay-active-pf/#post-39335 Tue, 17 Feb 2026 03:53:48 -0600 Reply to How to stay active with PF

Thank you for the breathing exercises! I’ve been in two different pulmonologist rehab programs and neither one provided that kind of information. Blessings to you!

]]> 6a21141b3c79cb8e505eb4191fe52ae6 scherry replied to the discussion Night time Oxygen Concentrators in the forum Healthcare Questions https://pulmonaryfibrosisnews.com/forums/forums/topic/night-time-oxygen-concentrators/#post-39097 Fri, 19 Dec 2025 20:36:31 -0600 Reply to Night time Oxygen Concentrators

Hi D, I have issues with sleeping with noise so we have it in another room. Some home concentrators are less noisy, but it still has a few different noises as it cycles. I do use ear plugs, for me sleep is more important, I do feel safe in my home and community so that helps.

Tell your oxygen provider you need the most quiet one. Doesn’t mean…

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]]> 19849e18812e0a9301433b7edd02845d scherry replied to the discussion Inverted Thinking about IPF in the forum PF Communities https://pulmonaryfibrosisnews.com/forums/forums/topic/inverted-thinking-about-ipf/#post-38945 Tue, 14 Oct 2025 21:23:51 -0500 Reply to Inverted Thinking about IPF

Hi, I like your approach! When I can change a perception that opens up other possibilities. Thank you!

]]> 7ee5ec2f71275b88cd7b10f6c89a26d5 scherry replied to the discussion Let's talk about supplemental oxygen in the forum Supplemental Oxygen and PF https://pulmonaryfibrosisnews.com/forums/forums/topic/lets-talk-about-supplemental-oxygen/#post-38801 Fri, 29 Aug 2025 21:39:41 -0500 Reply to Let's talk about supplemental oxygen

What is the quietest POC? Insurance provided a Rhythm POC and it is loud to me. I have a used OxyGo Next ( supposed to be the same as the Inogen 5) that is quieter but still loud. I am sensitive to noises and I hate the sounds of both concentrator and POC. And our house layout doesn’t allow for concentrator to be very far away. So guess I…

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]]> 5c7866c05f9691eed595ef76cccb4b93 scherry replied to the discussion relationship - fatigue & oxygen in the forum PF Communities https://pulmonaryfibrosisnews.com/forums/forums/topic/relationship-fatigue-oxygen/#post-38726 Fri, 15 Aug 2025 20:06:06 -0500 Reply to relationship - fatigue & oxygen

Thank you! Your explanation about low oxygen and organs and continuing was very encouraging for me!

]]> 1b4e5346e088fd079fa8bb7bb8992963 scherry replied to the discussion relationship - fatigue & oxygen in the forum PF Communities https://pulmonaryfibrosisnews.com/forums/forums/topic/relationship-fatigue-oxygen/#post-38725 Fri, 15 Aug 2025 20:03:23 -0500 Reply to relationship - fatigue & oxygen

Have you gone to another doctor for your husband? 2nd opinion? Since it came on so fast, I personally would not be thinking end of life. Could be a variety of things but I would get him in to another doctor asap.

]]> 176aaaa4dbd3f3f7858888671cf4efa5 scherry replied to the discussion insurance in the forum PF Communities https://pulmonaryfibrosisnews.com/forums/forums/topic/insurance/#post-38640 Fri, 18 Jul 2025 19:32:33 -0500 Reply to insurance

Hi, what kind of insurance does she have? If Medicare, then I can speak to that. If an Advantage plan then I don’t know anything. Let me know and I’ll answer back!

Blessings, Scherry

]]> 55d83712a6f3f1c377948913fe1b4d61 scherry replied to the discussion Things I miss before life with PF in the forum Hobbies & Projects https://pulmonaryfibrosisnews.com/forums/forums/topic/things-i-miss-before-life-with-pf/#post-38611 Tue, 08 Jul 2025 21:20:09 -0500 Reply to Things I miss before life with PF

I miss walking freely, no oxygen to plan for and haul around. I’ve adapted chores like laundry by sitting down and having front load machines help! Sitting down to dress.

]]> 719288b383ea771015aa049d5d26b779 scherry replied to the discussion Serious Side effects of OFEV in the forum Using Our Forums https://pulmonaryfibrosisnews.com/forums/forums/topic/serious-side-effects-of-ofev/#post-38264 Tue, 29 Apr 2025 22:18:14 -0500 Reply to Serious Side effects of OFEV

Hi, in 2019 during a different test, they identified scarring in my lungs. Went to pulmonologist, he called ILD then. Continued to see him but with a gap during covid. Everything stayed the same. I was living in Colorado and had no trouble breathing or doing anything. In March of 2023, saw pulmonologist and got the same, stayed the same,…

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]]> 40c52fade4b274a2bbe4504752d511b4 scherry became a registered member https://pulmonaryfibrosisnews.com/forums/activity/p/44468/ Mon, 31 Mar 2025 14:00:25 -0500 1