Pulmonary Fibrosis News Forums | Schutt | Activity https://pulmonaryfibrosisnews.com/forums/members/schutt/activity/ Activity feed for Schutt. Sat, 25 Apr 2026 19:20:10 -0500 https://buddypress.org/?v=2.20.0 en-US 30 hourly 2 9c14b1c89ae7bfe3e9c255344bcf7615 Schutt replied to the discussion On Ofev for nine months and had no stomach issues. Now having diarrhea constant in the forum Treatments and Science https://pulmonaryfibrosisnews.com/forums/forums/topic/on-ofev-for-nine-months-and-had-no-stomach-issues-now-having-diarrhea-constant/#post-37200 Thu, 20 Jun 2024 20:50:33 -0500 Reply to On Ofev for nine months and had no stomach issues. Now having diarrhea constant

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I have been on OFEV 2 years

For over 14 months I complained to the lung transplant group about the intestinal torture I was having as a side affect. I told friends, etc that it was like having a colonoscopy prep every day! Dr Nathan at Inova Fairfax suggested to try “CAROB”

It is a cooking, dry chocolate powder. Looks like Coaco…

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]]> 9ebc8ed39606a60e47685cce7212c935 Schutt replied to the discussion New to IPF in the forum Using Our Forums https://pulmonaryfibrosisnews.com/forums/forums/topic/new-to-ipf-2/#post-36445 Tue, 09 Jan 2024 20:50:40 -0600 Reply to New to IPF

Pops

This not an easy process to navigate. You need to be your own advocate. Specialty pharmacies are not going to authorize the OFEV without a true diagnosis via either a high resolution CT plus or minus lung biopsies. Then a script from your pulmonologist with the diagnosis. Once you are in a lung transplant program, the Dr’s have…

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