• Sheila Blanchard posted an update 3 years, 3 months ago

    I was diagnosed with IPF almost two years ago.I am 78 years old I also have type 2 Diabetes for many years and now my Kidney function has deteriorated some.Some nerve pain and joint and muscle pain which I contributed to Diabetes could be from IPF. What I would like to see , if anyone has burning and tingling in lower legs upon waking in the morning?My disease seems to be progressing slowly,thank God, but I am very breathless especially when doing anything like taking a shower or making or changing bed.I recently went for a echo cardio gram and am waiting for the results. I am not on any oxygen yet, have tried OFEV but it didn’t agree with me had some bad side effects.

    • Hi @sheilablanchard, thank you for sharing a bit about your experience and I am sure that others will chime in to answer some of your questions if they can!

      Sorry to hear about your nerve, joint and muscle pain. Of course I can’t say for certain whether these pains are associated with diabetes (I am not diabetic) or IPF, but for my own personal experience, I can say that I have had increased pain similar to what you describe since my IPF diagnosis. Have you ever considered seeing a Rheumatologist for the different types of pain you are experiencing? Mine was wonderful and really helped me get on top of the pain for the most part. I don’t have the tingling/burning in my lower legs in the morning, however, I do get a dull ache in my legs if I am standing too long. Does anyone else experience similar pain to Sheila, especially first thing in the morning?

      Please feel free to write any time Sheila, I am glad you found our forums and have joined us. Please also feel have a read through some of the forums on different types of pain and management for IPF-related pain. there may be some information in the discussions threads that are helpful for you 🙂

      Best wishes!
      Charlene.

©2021 KLEO Template a premium and multipurpose theme from Seventh Queen

CONTACT US

We're not around right now. But you can send us an email and we'll get back to you, asap.

Sending

Log in with your credentials

or    

Forgot your details?

Create Account