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Shirley

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@shirley-leeper

I’m becoming somewhat concerned with ILD seeming to be getting worse. Mainly really shortness of breath and low energy. I nebulize 3x a day and Arnuity 200 once a day. Coughing is almost constant with little or no mucus. My oxygen levels run anywhere from 90-93 so I probably don’t need oxygen assistance. Just wish I had more energy and […] View
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    Shirley posted a new activity comment 2 years, 4 months ago

    Well I’m back with better news than before. Don’t really know what is going on but my cough is better only nebulizing 2x a day, however the muscle cramps are getting much worse. Isn’t this crazy? I am trying magnesium and I think it helps some but when those leg cramps hit at 3 in the morning you wake up in a hurry. lol I too have the rib cage…[Read more]

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    Shirley posted an update 2 years, 5 months ago

    I’m becoming somewhat concerned with ILD seeming to be getting worse. Mainly really shortness of breath and low energy. I nebulize 3x a day and Arnuity 200 once a day. Coughing is almost constant with little or no mucus. My oxygen levels run anywhere from 90-93 so I probably don’t need oxygen assistance. Just wish I had more energy and could…[Read more]

    • Profile picture of Mark Koziol
      Mark Koziol replied 2 years, 5 months ago

      Hello Shirley, I am sorry to hear you have not been feeling well and experiencing these symptoms. I recently did a forum topic with a respiratory therapist. https://pulmonaryfibrosisnews.com/forums/forums/topic/an-interview-with-a-passionate-respiratory-therapist/
      She offered some tips to slow down your coughing periods. I would contact my…[Read more]

  • Profile picture of Shirley

    Shirley became a registered member 2 years, 9 months ago

    • Profile picture of Mark Koziol
      Mark Koziol replied 2 years, 9 months ago

      Hello Shirley, welcome and thank you for joining your pulmonary fibrosis forum.

    • Profile picture of Shirley
      Shirley replied 2 years, 4 months ago

      Well I’m back with better news than before. Don’t really know what is going on but my cough is better only nebulizing 2x a day, however the muscle cramps are getting much worse. Isn’t this crazy? I am trying magnesium and I think it helps some but when those leg cramps hit at 3 in the morning you wake up in a hurry. lol I too have the rib cage…[Read more]

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