@smason
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Christie Patient replied to the topic New to IPF in the forum Diagnosis Information and General Questions 2 years, 1 month ago
@smason An excellent question Steve, and one to which I do not know the answer. I did a quick search of Google scholar and couldn’t find any research that answers that question either.
If I were to speculate (remember I am not a doctor, just a person who’s tried to learn a lot about this), I would guess that it probably wouldn’t recur in the…[Read more]
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Charlene Marshall posted a new activity comment 2 years, 4 months ago
Hi @smason , thanks for writing. Yes, I don’t know how advanced the research and/or testing to determine genetic links to IPF is. It was also my understanding that it is in the infancy stages, though I am in contact with a family who has set up a clinic to better understand this link, and I believe they said it was out of Mayo. They were able to…[Read more]
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Charlene Marshall replied to the topic Reading Suggestions for Patients with IPF in the forum Join the Discussion: Welcome to all PF/IPF Patients 2 years, 4 months ago
Hi @smason ,
So sorry to hear of your father and sister’s death from IPF. This disease is cruel and has no boundaries! I’m really glad you found us, though sorry you had to, and that you’re finding my content interesting. I’m glad so far your ct-scan did not show evidence of IPF. There are a lot of really good people working on better…[Read more]
