Alan
Forum Replies Created
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I don’t know anything about the Cleveland Clinic but I have recently been accepted for a lung transplant evaluation at UPMC and on their website they say they take higher risk patients than most. Maybe if Cleveland Clinic doesn’t work out for you you could check out them out.
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I am a 72 year old male active and healthy except for the IPF and I’ve been on 150 mg of Ofev 2x a day for a year now and for the first couple of months the diarrhea, nausea, gas and bloating were pretty intense. I received advice from my primary and pulmonary doctors and also from the Boehringer/Ingelheim support. Most of it was to take the pill with food and if I had a problem take some anti-diarrhea or other meds to calm my system. I was getting pretty frustrated and then I noticed the foods I usually eat were not tasting the same(were not tasting good) and my appetite was not what it use to be. Kind of knowing that my present life style was not working I decided to make some changes. And now I can say I am pretty much out of the rut of eat, pill, and then toilet. How, you say. I have completely changed the foods I eat, way more baked,steamed and fresh foods. I have gone into some stir fry which so far so good and I stay on a routine with my meals. Solid breakfast with a light lunch and then decent dinner. I read where people take Ofev on empty stomachs and that is such a no-no from everything I have read and lived. I have learned what works for me is to take the Ofev 5 or 10 minutes after I have eaten my complete breakfast or dinner. I might have a slice of pie or some fruit after I take it and maybe a cup of tea. Everybody is different and what works for one is surely not for everybody but I do think that eating foods that work with you instead of against you is a key and also taking the Ofev after you eat gives your system a chance to start the digestion before the Ofev challenges it.
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This site has some excellent information but this particular thread is very confusing as it stands now. I am not sure how many zoom meetings have been held but I am hoping if another one was held , it was recorded and will be able to be viewed like the previous one was. By the way, which was excellent, very informative and left me wanting more.
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Yes, This sounds awesome and thank you, but being prime Holiday time I am sure a lot of people are going to miss it. If this could be recorded or maybe transcribed to text and saved that would be double awesome. Lets us know.