Biography

Name

Jack

Nickname

suejack13

Year of Birth

1946

Gender

Male

Location

Cape Cod, MA

Relationship

Patient

Short Bio

I am 74 years old.  I was diagnosed with Pulmonary Fibrosis about 2 to 2 1/2 years ago in mid 2017, I think.  At my last check up (about a month ago) I had lost a liter of lung capacity, although I started out with a 120% of my peers.  I am now starting to get concerned.  I am going to syart on OFEV in January.  I am curious about the experiences/sideeffects which others have experienced with OFEV.  Thanks for any insights.  Jack

Type of Diagnosis

IPF

Treatment / Medical Facility

Mass General , starting OFEV soon.

Current medication regimen

Ofev soon in January

Lung transplantation status

considering later

Supplemental Oxygen

no

Are you currently taking an anti-fibrotic medication?

no

How did you find us?

Other

How long have you or the person that you are caring for had PF?

2.5 years

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