Pulmonary Fibrosis News Forums | Sylvia Scott | Activity https://pulmonaryfibrosisnews.com/forums/members/sylvia-scott/activity/ Activity feed for Sylvia Scott. Sat, 04 Apr 2026 05:48:03 -0500 https://buddypress.org/?v=2.20.0 en-US 30 hourly 2 3d34d0b64292e2d13f5b5123738fea62 Sylvia Scott posted an update: IPF is the enemy of those who have been diagnosed. […] https://pulmonaryfibrosisnews.com/forums/activity/p/5198/ Tue, 28 Aug 2018 18:32:52 -0500 IPF is the enemy of those who have been diagnosed. The concept of oxygen therapy is finally being discussed in the higher medical circles, I plead with everyone, if they have been told that they need to wear a C-Pap mask to greet this suggestion with calm acceptance. On this sight and the new oxygen site. One lady told us about feeling… Read more

]]> 0 720c5e1a123748a4d5961b83a942a083 Sylvia Scott replied to the discussion Putting Yourself First as a Patient with Pulmonary Fibrosis. in the forum PF Life: Young Adults https://pulmonaryfibrosisnews.com/forums/forums/topic/putting-first-patient-pulmonary-fibrosis/#post-13328 Thu, 05 Jul 2018 18:45:02 -0500 Reply to Putting Yourself First as a Patient with Pulmonary Fibrosis.

To use plain words….It is horrible! I have been such an active woman. I have had a one lung transplant 13 years ago and I am on oxygen full time. I have other medical problems bu doing well right now. My left leg is paralyzed and I broke the same ankle and since can’t walk at all. My husband is wonderful but I so want to help him. He is on… Read more

]]> 7e7dacb3bb3198a7c1e016e3b06b3731 Sylvia Scott posted a new activity comment https://pulmonaryfibrosisnews.com/forums/activity/p/2173/#acomment-2316 Sun, 29 Apr 2018 00:19:49 -0500 Thank you. I like to keep in touch. I am on a charge for people who exist with IPF or transplants. I am a one lung transplant almost 13 years ago. Recently, I am busy trying to get lung patients, if they are told to get a sleep test go immediately. Then, If they tell them to get a c–pap or by-pap, please, wear the equipment. I wear one… Read more

In reply to - Sylvia Scott became a registered member ]]> c0f4122fbc7779999462cba18b857488 Sylvia Scott replied to the discussion Have you ever used liquid oxygen? in the forum Welcome Lounge https://pulmonaryfibrosisnews.com/forums/forums/topic/ever-used-liquid-oxygen/#post-12027 Tue, 24 Apr 2018 22:17:54 -0500 Reply to Have you ever used liquid oxygen?

Yes, I have always used liquid oxygen from 2002.  I finally got a portable concentrator to take when I travel. I even took the liquid on a cruise. It seems to be so smooth. It is just that the doctors don’t find out about it. More and more providers are phasing liquid out because it is too hard to manage.

 

]]> 878d70bd587fcd6ed23e2edc5491c904 Sylvia Scott became a registered member https://pulmonaryfibrosisnews.com/forums/activity/p/2173/ Tue, 24 Apr 2018 22:02:40 -0500 2