Tammy

Hi @tammyjbell1972

I think the pain really depends on the source and the person dealing with it. This thread is for people to share their experience and try to find out what might be causing the pain, but folks don’t seem to have an answer to your question of why. Keep reading back and check the forums for previous threads/pages of information about this.

@tammyjbell1972

Tammy – as we get farther into this disease many patients develop PAH which usually affects heart rate response and others may end up contracting AFib further adding to the side effects. I have both and my heart rate sounds similar to yours.  Your doctor should be alerted to your HR and go get tested…

Stay well,

Steve

@tammyjbell1972

Hi Tammy – I can’t help much with the numbers but there are a couple of videos on YT that have some insight.  It sounds similar to me and I was diagnosed with pulmonary artery hypertension (PAH) that apparently comes with this lovely disease (IPF).

I am stuck out of the USA so no meds for PAH however I do take a lot of…[Read more]

@tammyjbell1972

Hi Tammy,

It took me 13 months to get diagnosed with IPF and they ran a myriad of tests, but only after it was detected my 02 readings were low. They never checked this in the 9 months I was seeking answers at the doctor’s for shortness of breath; they only checked it when I went to an urgent care clinic. Not sure if this…[Read more]

@tammyjbell1972 Everything you described is normal. A slight dip in O2 sat while exercising is normal, and with PF your oxygen saturation tends to run low even if you aren’t doing anything strenuous. Low 50’s is a healthy resting heart rate. It is normal for it to go up into the 100’s when you stand and walk. Fibrosis tends to cause a higher than…[Read more]