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Thom

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@thom

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  • Profile picture of Lynn Schmitt

    Lynn Schmitt posted an update 3 years, 9 months ago

    @charlene-marshall, Could you please tell me what number of O2 you have to use with your POC? And what number do you use for exertion on an oxygen tank?

    • Profile picture of Charlene Marshall
      Charlene Marshall replied 3 years, 9 months ago

      Hi @lynn-schmitt, nice to hear from you, thanks for writing! Sorry about the delay in getting back to you – things are a bit chaotic here. Sure, I usually use 4LPM during exertion while using my POC, and only 2 at rest. I find my needs are higher while using my tanks, though not sure why. Maybe the quality of the 02? I find with my tanks I am…[Read more]

      • Profile picture of Lynn Schmitt
        Lynn Schmitt replied 3 years, 9 months ago

        Hi, Charlene!
        I am going to San Diego in 6 weeks. I have an Inogen One G2, which weighs about 7:5 pounds. I am on 4 limit oxygen when active. My POC goes to 6 pulse. How do you take your trips and carry around your POC? I am thinking about ordering a backpack for the Inogen, but I am afraid that it will be too heavy with the double battery.…[Read more]

        • Profile picture of Charlene Marshall
          Charlene Marshall replied 3 years, 9 months ago

          Hi Lynn!

          Oh that is very exciting – I’ve never been to San Diego, but I’d love to go! Enjoy your trip! 🙂

          Good question re: carrying around your POC. I have the SimplyGo Respironics machine and while it is easy to travel with, being FAA approved for airlines, it is heavy and that is the only complaint I have about the POC I use. Thankfully it…[Read more]

  • Profile picture of Lynn Schmitt

    Lynn Schmitt posted a new activity comment 3 years, 11 months ago

    Denny, do you have scarring and are you on O2?

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    • Profile picture of Denny
      Denny replied 3 years, 11 months ago

      Hi Lynn, yes I have scarring but my O2 is still up around 98/99. My DLCO is my bad number where it is hard to get my oxygen to my organs and release carbon dioxide.

  • Profile picture of Helen

    Helen became a registered member 4 years, 5 months ago

    • Profile picture of Charlene Marshall
      Charlene Marshall replied 4 years, 5 months ago

      Hi Helen, welcome to the PF forums. Thanks for joining us!

    • Profile picture of Helen
      Helen replied 4 years, 5 months ago

      Hey folks, just saying Hi! New to this site and only recently diagnosed with IPF. Trying to take it all in and don’t know where to start. Have no idea how to deal with this. Pretending I am dealing with it to others but falling apart on !y own. How do you cope with this? H.x

  • Profile picture of Thom

    Thom became a registered member 4 years, 5 months ago

    • Profile picture of Charlene Marshall
      Charlene Marshall replied 4 years, 5 months ago

      Thanks for joining the PF forums Thom. Welcome!

  • Profile picture of John Klinkosh

    John Klinkosh posted a new activity comment 5 years, 2 months ago

    Thank you, I hope I can navigate through this forum

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    • Profile picture of Charlene Marshall
      Charlene Marshall replied 5 years, 2 months ago

      You’re welcome John.
      If you have any troubles, or questions re: how to navigate through the forums, please don’t hesitate to be in touch. I’d be happy to help!

      You can also explore some tips here:https://pulmonaryfibrosisnews.com/forums/forum/using-our-forums/

      Warmly,
      Charlene

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