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Lynn Schmitt posted an update 1 year, 1 month ago
@charlene-marshall, Could you please tell me what number of O2 you have to use with your POC? And what number do you use for exertion on an oxygen tank?
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Lynn Schmitt posted a new activity comment 1 year, 3 months ago
Denny, do you have scarring and are you on O2?
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Hi Lynn, yes I have scarring but my O2 is still up around 98/99. My DLCO is my bad number where it is hard to get my oxygen to my organs and release carbon dioxide.
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Helen became a registered member 1 year, 9 months ago
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Hi Helen, welcome to the PF forums. Thanks for joining us!
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Hey folks, just saying Hi! New to this site and only recently diagnosed with IPF. Trying to take it all in and don’t know where to start. Have no idea how to deal with this. Pretending I am dealing with it to others but falling apart on !y own. How do you cope with this? H.x
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Thom became a registered member 1 year, 9 months ago
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Thanks for joining the PF forums Thom. Welcome!
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John Klinkosh posted a new activity comment 2 years, 5 months ago
Thank you, I hope I can navigate through this forum
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You’re welcome John.
If you have any troubles, or questions re: how to navigate through the forums, please don’t hesitate to be in touch. I’d be happy to help!You can also explore some tips here:https://pulmonaryfibrosisnews.com/forums/forum/using-our-forums/
Warmly,
Charlene
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Hi @lynn-schmitt, nice to hear from you, thanks for writing! Sorry about the delay in getting back to you – things are a bit chaotic here. Sure, I usually use 4LPM during exertion while using my POC, and only 2 at rest. I find my needs are higher while using my tanks, though not sure why. Maybe the quality of the 02? I find with my tanks I am…[Read more]
Hi, Charlene!
I am going to San Diego in 6 weeks. I have an Inogen One G2, which weighs about 7:5 pounds. I am on 4 limit oxygen when active. My POC goes to 6 pulse. How do you take your trips and carry around your POC? I am thinking about ordering a backpack for the Inogen, but I am afraid that it will be too heavy with the double battery.…[Read more]
Hi Lynn!
Oh that is very exciting – I’ve never been to San Diego, but I’d love to go! Enjoy your trip! 🙂
Good question re: carrying around your POC. I have the SimplyGo Respironics machine and while it is easy to travel with, being FAA approved for airlines, it is heavy and that is the only complaint I have about the POC I use. Thankfully it…[Read more]