Thom

@thom, I have a hernia also & it’s very hindering to me, it’s very large & now wonder if it has something to do with IP  also same thing with me … it’s hard to be really comfortable but I have a great Dr’s. & hospitals too.

I have checked also about the sweating  as I do have issues with that..ok I’ll write  more later

sta

Hi @thom:

I appreciated reading your post, specifically regarding Ofev and the possibility of a heart attack as a side effect.

I was diagnosed in 2016 with ILD/PF. My doctor has not started me on medication. I now started to see a second doctor, who changed the diagnosis to IPF.  I go for my follow-up appointment in May.

Also, in 2016, it was…[Read more]

Hi Andy,

Great response for Thom, thanks for replying to him and I hope it helps a bit @thom. I’m not surprised about your physician’s reaction to laser therapy and almost seeming “annoyed” that it was brought up. This is very unfortunate, but I also understand the scope of what they’re working in (not to mention the amount of work Doctor’s have…[Read more]

Definitely keeping my fingers crossed that it remains this way for you @thom! I am lucky to report that I didn’t have a lot of trouble when starting this drug either, just occasional discomfort but not even enough for me to know whether it was the Ofev or something I’d eaten – that is how sporadic it is. Will be thinking of you and hoping you…[Read more]