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Charlene Marshall replied to the topic Increased Throat Clearing in the forum Join the Discussion: Welcome to all PF/IPF Patients 2 years ago
Thanks so much for sharing this information with me! I think I am going to try some of the nasal rinses/remedies you mentioned on Amazon and see if that helps, before engaging with my doctor. I love mint so I don’t imagine the sting of the menthol will bother me but good to know. Thanks again for sharing, I’ll report back on…[Read more]
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Charlene Marshall replied to the topic Dizziness and IPF in the forum Living with Pulmonary Fibrosis: 50+ 2 years, 2 months ago
Hi Libby,
Thanks so much for writing regarding this topic. You’ve given me some great points to think about!
I’m going to look into the BPV, I’d never heard of this before and the dizziness is definitely attributed to moving my head/turning it quickly. Thankfully, these last few days it has been much improved but I feel as though…[Read more]
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Charlene Marshall replied to the topic Mitigating Risk as a Patient with Pulmonary Fibrosis in the forum Join the Discussion: Welcome to all PF/IPF Patients 2 years, 6 months ago
Hi Libby,
So nice to hear from you and glad you’re keeping as well as possible. I couldn’t agree with you more re: mitigating as much risk as possible but also living your life so our emotional and mental health isn’t compromised. I believe that is what makes our lives a quality one, and these things are so important. I’m so…[Read more]
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Charlene Marshall replied to the topic Side effects of OFEV in the forum Ofev (Nintedanib) 2 years, 7 months ago
Wow @travelingnana ,
Sorry to hear this Libby — a bummer you can’t get these in the US due to others’ behaviours and them being discontinued. How frustrating! I’m glad you still have other options that help you though, by the sounds of it. Keeping my fingers crossed the side effects remain tolerable.
Sincerely,
Char.
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Charlene Marshall replied to the topic Side effects of OFEV in the forum Ofev (Nintedanib) 2 years, 7 months ago
Hi Libby,
Oh this makes me sad that they aren’t readily available where you are! These are the ones I try to get (sometimes the packaging is a bit different):https://www.imodium.ca/products/imodium-quick-dissolve
I wonder if Amazon has them or if you can order right off the US-site for imodium? I usually get them at my…[Read more]