Biography

Name

W. Terry Schoener

Nickname

w-terry-schoener

Year of Birth

1937

Gender

Male

Location

Chesapeake Beach, MD

Relationship

Patient

Short Bio

Born & raised in Pittsburgh, a pastor since 1963, Active in the Civil Rights movement, three children, 6 grandchildren, two great grand children. Married for 54 years but lost my wife in 2015. Have recently married again and loving it. All my life a long distance runner and having lung problems was the last thing I thought might happen. I am being treated at Johns Hopkins. I am able to carry on with the help of oxygen   … enjoying life, happy most of the time, and very grateful for the life I’ve been given.

Type of Diagnosis

IPF

Treatment / Medical Facility

Johns Hopkins

Current medication regimen

Leaving Ofev (too many side effects) beginning Esbriet

Lung transplantation status

ineligible

Supplemental Oxygen

yes

Are you currently taking an anti-fibrotic medication?

yes

How did you find us?

Physician

How long have you or the person that you are caring for had PF?

2 years since diagnosis

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