Like Lou Body IV I thought I was lucky enough not to have the reaction to the sun. Lou’s post seems to confirm my suspicions. I had been on Esbriet for a bit over a year and a half with no noticeable sun effects. Then, after a day working outside, a hives-like rash appeared on the backs of my hands (which were basically the only unprotected skin showing). It became very itchy and remained that way for quite some time. I didn’t immediately relate it to an Esbriet side effect and tried various treatments including aloe vera and vitamin A ointment. I tried a cream my daughter had that was supposed to be good for eczema but had to wash it off a couple of minutes after application because it was stinging so much. About 3 months later it is almost cleared up but I have to apply (paw paw) ointment to overcome the dryness. I won’t be taking chances again! I even bought a pair of fingerless sun safe gloves, particularly for driving.
My most consistent problem with Esbriet is a nagging mild nausea that comes and goes. At times I just don’t feel like eating because nothing seems to appeal. I eat because I have to have the pills with food. Has anyone else had and overcome the nausea challenge?
