Pulmonary Fibrosis News Forums | Bill Weber | Activity https://pulmonaryfibrosisnews.com/forums/members/weberwf/activity/ Activity feed for Bill Weber. Fri, 24 Apr 2026 18:39:27 -0500 https://buddypress.org/?v=2.20.0 en-US 30 hourly 2 5c11df3b812ac1006bca73e1f228f23c Bill Weber replied to the discussion Jascayd and Ofev in the forum Jascayd (nerandomilast) https://pulmonaryfibrosisnews.com/forums/forums/topic/jascayd-and-ofev/#post-39093 Thu, 18 Dec 2025 20:40:05 -0600 Reply to Jascayd and Ofev

I also use (1) tablespoon. In addition to the carob powder, I also put in (1) tablespoon of carnation instant breakfast. Not that it helps with the diarrhea, but I enjoy the taste. I use almond milk as I found using regular milk with lactose was not good. Good luck as the carob powder erased any fear I had of being in public and having an accident.

]]> ebb4a5d4417912172613ecf7f7fc4ffb Bill Weber replied to the discussion Jascayd and Ofev in the forum Jascayd (nerandomilast) https://pulmonaryfibrosisnews.com/forums/forums/topic/jascayd-and-ofev/#post-39086 Tue, 16 Dec 2025 22:10:46 -0600 Reply to Jascayd and Ofev

I have been on OFEV 150 mg twice/day for 1 year. Was previously on pirfenidone for 2 years but took a downturn so switched. Three weeks ago, I added 9mg of Jascayd and take at the same time as the OFEV. Have not noticed any difference on side effects but am one of the lucky ones that my side effects were minimal (some diarrhea) with OFEV.…

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]]> 0bc931ab47f2176f120f0352ed273b0d Bill Weber posted an update: It certainly seems everyone reacts differently to the […] https://pulmonaryfibrosisnews.com/forums/activity/p/39137/ Fri, 16 Jun 2023 12:19:05 -0500 It certainly seems everyone reacts differently to the meds, so thought I would report this. I started taking Esbriet in early March and built up to 3 pills/3 times per day. Am in the sun every day and living in the south it can get intense. So far I have had no skin impact and basically haven’t changed the way I clothe or apply sun screen. I… Read more

]]> 0 197e3932a7246533925fe260ee2e5a34 Bill Weber replied to the discussion Side effects of exposure to the sun in the forum Esbriet (Pirfenidone) https://pulmonaryfibrosisnews.com/forums/forums/topic/side-effects-of-exposure-to-the-sun/#post-34463 Mon, 20 Feb 2023 23:44:11 -0600 Reply to Side effects of exposure to the sun

Was recently diagnosed and evaluating Esbriet vs OFEV.  Realize everyone reacts differently so understand the only way to really know is begin on one of them. Have previous heart conditions and susceptible to GI issues so would like to start with Esbriet. I live in the south and continually outside so possible sun side effects with Esbriet is… Read more

]]> eea0b5887c0fc57cbd50c1487a653876 Bill Weber became a registered member https://pulmonaryfibrosisnews.com/forums/activity/p/37566/ Mon, 20 Feb 2023 16:02:52 -0600 0