Wendy Dirks

Hi @wendy-dirks ,

I am so happy to see those green hearts and hear that you’re doing well! I know things can get overwhelming quickly, so I am really glad things are going well for you and that you’re content with the UK’s response to those with ILDs. I’ve not heard of anywhere else adopting this (some local stores are allowing a “senior’s…[Read more]

Really extraordinary times, I agree @wendy-dirks ! Very similar lockdown procedures happening all over the world Susan, sure makes it tough for folks. However, one thing important to remember (though it took my mind some time to shift to this perspective) is the collective impact we could have, as opposed the individual one. I’ve not heard of…[Read more]

Hi @wendy-dirks ,

Oh sorry – that was totally my misunderstanding! When I went back to read your original post, you were clear but my interpretation of it wasn’t. I suppose that is what happens when it is text/writing we’re dealing with 🙂 Glad you’re able to continue with all of your scans and appointments, I know being in the hospital right now…[Read more]

Hi @wendy-dirks ,

So glad the issue has been resolved now – you’re such a valued member of our forums! We’ve also added you to the “whitelist” to ensure your email is never flagged as spam. Hopefully this stops the issue of not being able to post in future too.

Yes, I just spent some time in California! I got home yesterday, and was there to…[Read more]

I am looking into this for you @wendy-dirks. Having our tech team take a look! Thank you for letting me know that the error message said, and that you’ve tried a different browser already. I’ll see what they come back with for suggestions. I’m just home from time in California so if I don’t do this in a timely manner, circle back and remind me as…[Read more]

Thank you for sharing this @noah-greenspan !

Tagging the lovely members of our forums who were inquiring about this so they can see this response too. Enjoy your day and thanks for chiming in with this information.

@wendy-dirks @reglois @casey @nanm

@wendy-dirks

Hi Wendy  I was sleeping a lot when I was first diagnosed with IPF. I just assumed it was from the stress and anxiety.  My pulmonologist suggested an overnight sleep study to check for sleep apnea. Sure enough , I have sleep apnea. I was put on a CPAP. It’s a little hard to get comfortable with at first but the difference was n…[Read more]

@patience21

Hi Pearl: While pouring my heart out on the ‘Living Our Lives’ forum, @wendy-dirks, was kind enough to turn me on to www DOT self-compassion DOT org — specifically the Self-Compassion Guided Meditations and Exercises. That night I listened to two Guided Meditation recordings and then another two the next day. Very helpful. You may…[Read more]

@wendy-dirks, @reglois

Hi Wendy and Susan,

I am 70 and was on my own with this lovely disease until I returned to the Philippines last month. 11 months ago I found these wonderful forums and discovered there are a good number of people using supplements and alternative therapies to their significant advantage.

I don’t know your ages but when we…[Read more]