Hello to all:

I was diagnosed with IPF in October of 2020. The diagnoses followed a brief hospitalization and lung biopsy. My pulmonologist at National Jewish in Denver Colorado recommended that I consider either of the two oral medications currently available. I chose OFEV, 150 mg twice a day. The side effects are significant but I have…

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I agree with the numerous comments urging caution when considering a lung biopsy. I received a diagnosis of IPF in October of 2020. My pulmonologist and I began the discussion of treatment. One of my concerns at that time was “are you sure of the diagnosis” to which my pulmonologist replied “the only way to be absolutely sure is to have a… Read more

Here are my answers concerning my Ofev experience:

1. I started Ofev about 6 months after my October 2020 diagnosis.

2. I was not told at that time about the severely of my IPF. I had a surgical biopsy soon after and learned I did indeed have IPF showing mild to moderate progression.

3. Choosing Ofev was my decision as the Doc… Read more

I’m interested. Forward details and time.

To you my fellow travelers on this uncertain and scary journey we call IPF I say thank you for your stories, they help me to deal with the issues I face.  I am a 73 year old who was diagnosed with IPF in October 2020.  Until then I was very active in my business as well as numerous outside activities.  I live in Colorado at an elevation of… Read more

I am very interested in Jerry’s post. I am also a veteran. I receive some care through the VA. However, for my IPF I receive care from National Jewish in Denver Colorado. My VA physicians were not as callous as Jerry’s but they were very supportive in my seeking care elsewhere.  Since I am VA documented agent orange exposed I have pressed the VA… Read more