Pulmonary Fibrosis News Forums | Jane | Activity https://pulmonaryfibrosisnews.com/forums/members/williesmom/activity/ Activity feed for Jane. Tue, 21 Apr 2026 01:00:26 -0500 https://buddypress.org/?v=2.20.0 en-US 30 hourly 2 905140bc278c6f2081ffbb19e8c13349 Jane replied to the discussion Side effects of OFEV in the forum Ofev (Nintedanib) https://pulmonaryfibrosisnews.com/forums/forums/topic/side-effects-of-ofev/#post-24635 Thu, 11 Jun 2020 00:16:19 -0500 Reply to Side effects of OFEV

Hi All,

Doctor Salzberg, Yvonne and Charlene:

Thank you for all your help during my initiation to OFEV. It’s been just over 3 months since I started. I have learned so much. I am not nauseous anymore!! I do occasionally get diarrhea but if so I take an Imodium and it stops it. I believe that my body needed to adjust to this med.

My… Read more

]]> 09e287bd618f8e5771d9b35ef14bf702 Jane replied to the discussion Side effects of OFEV in the forum Ofev (Nintedanib) https://pulmonaryfibrosisnews.com/forums/forums/topic/side-effects-of-ofev/#post-23707 Fri, 27 Mar 2020 00:34:47 -0500 Reply to Side effects of OFEV

Hi Doctor Salzberg,

Thank you so much for sharing your experience with me. I am going to start to keep a food journal to better understand the reactions to what I have been eating. I have been so concerned with avoiding diarrhea that I stopped eating salad and many veggies and I am wondering if this has contributed to my hair loss. I do need… Read more

]]> bba750427208a102e68f737d08e5b922 Jane replied to the discussion Hair thinning: a side effect of Ofev? in the forum Ofev (Nintedanib) https://pulmonaryfibrosisnews.com/forums/forums/topic/hair-thinning-a-side-effect-of-ofev/#post-23442 Sun, 15 Mar 2020 15:08:20 -0500 Reply to Hair thinning: a side effect of Ofev?

Charlene,

Thank you for your immediate response, I am impressed with your timing on your reply and appreciate your advise.

I have already ordered the air products and will buy a satin pillow case.

Best,

Jane

 

]]> a6ef19148faaa26be44cd1f0b3f17079 Jane replied to the discussion Hair thinning: a side effect of Ofev? in the forum Ofev (Nintedanib) https://pulmonaryfibrosisnews.com/forums/forums/topic/hair-thinning-a-side-effect-of-ofev/#post-23436 Sat, 14 Mar 2020 18:51:05 -0500 Reply to Hair thinning: a side effect of Ofev?

Hi everyone,

This is my first post. I have been on Ofev 150 mg 2x’s a day for 2.5 weeks so far and am tolerating it well. I ave to say I has a lot of anxiety about this medication but after a diagnosis of IFP I knew I must take it and I am thrilled that I can tolerate it.

I just googled hair loss and Ofev as I have been noticing a lot of… Read more

]]> a1f546a6d7d9d6e0ae4b7e22a737aeb6 Jane became a registered member https://pulmonaryfibrosisnews.com/forums/activity/p/16741/ Wed, 18 Dec 2019 15:53:19 -0600 1