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Charlene Marshall replied to the topic Side effects of OFEV in the forum Ofev (Nintedanib) 2 years, 11 months ago
Hi Jane,
Thank you so much for writing and sharing this experience with us: I am thrilled you’re managing on the Ofev! I know it is a tough drug to tolerate, so really glad you’ve found some information on this site that has helped with that adjustment. It sure takes time, I agree 🙂
Glad the hair loss has subsided a bit, along…[Read more]
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Jane replied to the topic Side effects of OFEV in the forum Ofev (Nintedanib) 2 years, 11 months ago
Hi All,
Doctor Salzberg, Yvonne and Charlene:
Thank you for all your help during my initiation to OFEV. It’s been just over 3 months since I started. I have learned so much. I am not nauseous anymore!! I do occasionally get diarrhea but if so I take an Imodium and it stops it. I believe that my body needed to adjust to this med.
My doctor…[Read more]
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Charlene Marshall replied to the topic Side effects of OFEV in the forum Ofev (Nintedanib) 3 years, 2 months ago
Hi Jane,
Thanks for writing – it is nice to hear from you, though so sorry to hear of the unpleasant side effects of Ofev. The 150 mg dose twice daily sure can be tough on our system! It is hard to know if a reduction to the 100/ 2x daily will reduce your side effects, because everyone tolerates the drug so differently. However, I…[Read more]