Forum Replies Created

  • Gaynor

    Member
    December 10, 2020 at 9:34 am in reply to: Do others with IPF cough for 20 minutes every morning?

    Thank you Ron, really useful information. I wake up and then cough for at least 20 minutes. The other contributors also provide some excellent advice. Thank you

  • Gaynor

    Member
    December 2, 2020 at 10:39 am in reply to: How does taking Prednisone help IPF patients

    When I first started using Prednisone, my face did become bigger and my appetite increased but fortunately I did not put on weight. My appetite has settled down. But I have heard of others who have had that problem of weight gain. My face does , well to me, look a bit moon faced but I still think taking Prednisone has certainly helped me. My skin is much thinner though and often feel it has affected the condition of my hair but that is minor. But exercise has helped.

  • Gaynor

    Member
    November 25, 2020 at 10:47 am in reply to: How does taking Prednisone help IPF patients

    I have been taking Prednisone for about 10 years, I have had no apparent side effects. I do take Adcal which does help my bone density and I have had that tested too. I do believe that this drug has extended my life, I have Sjogrens Syndrome and the IPF is associated with that. As I get older, I am slowing down, my breathing is getting a bit more difficult, but I know that if it does get worse I can increase the dosage – I am on 10mg per day. I did try reducing it to 5mg but it had to be increased.

    I appreciate being able to read other people’s experiences – thank you. I do not have anyone around here who have the same problems, especially now we have rather strict restrictions due to COVID 19.