Forum Replies Created

  • wschultz2019

    Member
    July 23, 2019 at 9:44 pm in reply to: The Frequency of Changing Your Nasal Cannula

    Great question.  I am on high volume (4 to 7 L/min) oxygen 24/7.  I change my cannula at 4 weeks.  I would prefer to change my cannula every 1 to 2 weeks but don’t because it takes so much time an oxygen to purge the cannula of residual ethylene oxide and ethylene chlorohydrin that burn my nose for days and that would otherwise end up in my already highly compromised lungs.  Besides residual sterilizing agent I believe based upon my previous work background but without any supporting laboratory data, there may be residual plasticizers as well.  FDA is actively working on reducing the levels of residual chemical or developing novel processes for sterilization. I purge 7 ft cannulas using the oxygen outlet on my liquid oxygen supply vessel.  I purge it for days at 1 to 1.5 L/min.

  • wschultz2019

    Member
    April 2, 2019 at 9:31 am in reply to: Anxiety and IPF

    Yes and yes.

    Different story in that unlike you and over a period of 8 months, I have not been able to return to work or a “normal “ life. I remain on continuous oxygen at 4 to 8 lpm. I have survived, however, the perfect storm of a triple assault of Zoster, pneumonia and upper respiratory virus.

    Anxiety remains a constant and breath taking event. I do get relief by taking a very modest dose of Lorazepam.  Regardless, I focus on the positive and remain optimistic.