@Ben Robinson•
Joined Dec 2020 •
Active 3 years ago
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Biography
Name
Ben Robinson
Nickname
ben-robinson
Location
Maryland
Relationship
Patient
Short Bio
Engineer. PF MTVD ILD NSIP Cor Pulmonale and intermittent arrhythmia. In reversal softening stage but with significant damage.
Treatment / Medical Facility
UMM
Current medication regimen
Prednisone Tyvaso Sotalol
Lung transplantation status
currently in evaluation process
Supplemental Oxygen
yes
Best advice for PF symptom management
Prednisone Bursts 40 mg. 5 days every 4th week. Then 7.5 mg daily otherwise. Workout cardio elyptical.
Are you currently taking an anti-fibrotic medication?
yes
How did you find us?
—
How long have you or the person that you are caring for had PF?
6 years
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