• Forum
    • Topics
    • Posts
    • Freshness
    • Hobbies & Projects
      This forum was created at the recommendation of one of our members, to showcase different hobbies and projects that have brought patients with IPF/PF joy since their diagnosis. Feel free to upload photos, share project details/ideas and ask questions. Please ask permission before using any photos of members' projects. Thank you.
    • 17
    • 251
    • 3 weeks ago

       Charlene Marshall

    • Polls & Quizzes
      Test your knowledge of IPF and provide valuable insight to the patient community by having your say on a wide range of questions and issues pertaining to pulmonary fibrosis.
    • 11
    • 174
    • 3 months ago

       Charlene Marshall

    • Join the Discussion: Welcome to all PF/IPF Patients
      This forum is welcome to all members of the PF/IPF community. Topics will primarily be applicable to patients, however, caregivers, advocates, researchers and medical professionals are most welcome to join and start a topic discussion. This is a space where everyone is welcome: we're all in this together.
    • 152
    • 1,461
    • 3 days, 5 hours ago

       Cynthia

    • Diagnosis​ ​Information​ ​and​ ​General​ ​Questions
      This​ ​forum​ is​ ​designed​ ​for​ ​newly​ ​diagnosed patients​ ​and​ ​parents/caregivers​ ​who​ ​are​ ​looking​ ​for​ ​information​ ​about​ ​where​ ​to​ ​start​ ​in​ ​their pulmonary fibrosis ​journey.​ ​Here​ ​is​ ​where​ ​people​ ​can​ ​ask​ ​basic​ ​questions​ ​about​ ​pulmonary fibrosis ​and​ ​help​ ​each other​ ​through​ ​the​ ​initial​ ​diagnosis​ ​stage. Patients, caregivers, friends and family welcome.
    • 142
    • 1,474
    • 5 hours, 57 minutes ago

       Charlene Marshall

    • Caregivers and Spouses
      Inevitably, pulmonary fibrosis affects caregivers and spouses as much as the patients, and this group is a unique circle of support solely for them! Join to discuss the emotional, social and physical impact of caring for someone with PF/IPF and explore coping techniques from others sharing the same experience. Share your strategies, and enjoy the comfort and company of others who know exactly how you are feeling as a caregiver of someone living with PF/IPF.
    • 24
    • 135
    • 2 months, 2 weeks ago

       Charlene Marshall

    • Research and Development
      This group unites PF patients, caregivers, researchers and medical professionals in a platform to discuss the latest research and medical advances related to PF. Information shared in this group is public and therefore can be read, shared and discussed by all members. Everyone's contributions are welcome and encouraged.
    • 92
    • 152
    • 2 months, 3 weeks ago

       Connie Lum

    • Esbriet (Pirfenidone)
      Join this forum to discuss everything pertaining to the use of Esbriet in the management of PF. Ask questions, seek experiential advice or share your overall experiences with things like side effects, long- vs. short-term usage, dosage, medication costs and more.
    • 10
    • 463
    • 1 month, 2 weeks ago

       Sheila O’Brien

    • Ofev (Nintedanib)
      Join this forum to discuss everything pertaining to the use of Ofev in the management of PF. Ask questions, seek experiential advice or share your overall experiences with things like side effects, long vs. short term usage, dosages, medication costs and more.
    • 12
    • 351
    • 15 hours, 48 minutes ago

       Patricia Williams

    • Canadians Living with Pulmonary Fibrosis
      Canadians have notable differences in healthcare and thus, in the treatment of IPF/PF. This group is for Canadian patients and caregivers (immediate family members or spouses) supporting someone living with IPF/PF. Join the discussion to find information on local support groups, discuss treatment options, medical facilities and more as it pertains to Canadian patients living with IPF/PF.
    • 19
    • 155
    • 2 weeks, 4 days ago

       Steve Dragoo

    • Pulmonary Fibrosis Awareness & Advocacy
      This forum is designed for everyone in the PF community. Whether you are a patient, caregiver, researcher, fundraiser or advocate, you are welcome here and we're glad to have you! Please feel free to share your ideas on raising awareness for PF, fundraising initiatives and any PF-related discussion topics or questions you might be thinking about.
    • 58
    • 858
    • 6 hours, 2 minutes ago

       Charlene Marshall

    • PF Caregivers, Family Members & Spouses
      This space is for those caring for a loved one with Pulmonary Fibrosis to connect. Join to discuss topics that pertain to being the sole care provider(s) for your loved one in the comfort of others who truly understand. In the presence of other caregivers only, this is a space to share your experiences and ask questions.
    • 3
    • 3
    • 1 year, 2 months ago

       Marta Ribeiro

    • Living with Pulmonary Fibrosis: 50+
      Connect with others living with Pulmonary Fibrosis in the same life stage as you, and discuss issues such as: limited mobility, exercise, tips & tricks of managing daily living with oxygen, planning for end-of-life care (as applicable), pain management and more.
    • 87
    • 696
    • 6 days, 6 hours ago

       Mark Koziol

    • Pre/Post Lung Transplant
      This group is for patients living with Pulmonary Fibrosis who have been referred to a lung transplant program, or who have received their new gift of life. Many patients know that treatment for PF will include a lung transplant, however, this group is for those in the active stages of pursuing transplantation or who have received new lungs. Discussions will include: medication management, pre/post physical transplant care, caregiver support and the many ways that transplant can impact a patient and their family, including: mental, social, emotional and psychological.
    • 31
    • 210
    • 1 month ago

       Mark Koziol

    • Upcoming Medical Appointments: Q&As
      This forum is designed to give all PF patients a place to connect prior to, or following their medical appointments. Please join the discussion to ask questions, seek advice or share your feelings pertaining to upcoming appointments with other patients who can directly relate.
    • 18
    • 154
    • 1 month, 2 weeks ago

       Susan Howitt

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