Healthy Recipe Sharing
This forum is a place for healthy recipe sharing, since healthy eating is an important part of all chronic illness management. Please share some of your favourite meal ideas & recipes!
- 3 weeks, 5 days ago
Hobbies & Projects
This forum was created at the recommendation of one of our members, to showcase different hobbies and projects that have brought patients with IPF/PF joy since their diagnosis. Feel free to upload photos, share project details/ideas and ask questions. Please ask permission before using any photos of members' projects. Thank you.
- 1 day ago
Polls & Quizzes
Test your knowledge of IPF and provide valuable insight to the patient community by having your say on a wide range of questions and issues pertaining to pulmonary fibrosis.
- 1 week, 1 day ago
Join the Discussion: Welcome to all PF/IPF Patients
This forum is welcome to all members of the PF/IPF community. Topics will primarily be applicable to patients, however, caregivers, advocates, researchers and medical professionals are most welcome to join and start a topic discussion. This is a space where everyone is welcome: we're all in this together.
- 3 hours, 34 minutes ago
Diagnosis Information and General Questions
This forum is designed for newly diagnosed patients and parents/caregivers who are looking for information about where to start in their pulmonary fibrosis journey. Here is where people can ask basic questions about pulmonary fibrosis and help each other through the initial diagnosis stage. Patients, caregivers, friends and family welcome.
- 14 hours, 51 minutes ago
Caregivers and Spouses
Inevitably, pulmonary fibrosis affects caregivers and spouses as much as the patients, and this group is a unique circle of support solely for them! Join to discuss the emotional, social and physical impact of caring for someone with PF/IPF and explore coping techniques from others sharing the same experience. Share your strategies, and enjoy the comfort and company of others who know exactly how you are feeling as a caregiver of someone living with PF/IPF.
- 4 months, 1 week ago
Employment & Pulmonary Fibrosis
This forum has been designed to discuss topics pertaining to being employed (full- or part-time) while living with pulmonary fibrosis. All discussion topics are welcome.
- 2 weeks, 2 days ago
Join this discussion to share your experiences and/or interest in clinical trials pertaining to pulmonary fibrosis.
- 1 year ago
Research and Development
This group unites PF patients, caregivers, researchers and medical professionals in a platform to discuss the latest research and medical advances related to PF. Information shared in this group is public and therefore can be read, shared and discussed by all members. Everyone's contributions are welcome and encouraged.
- 2 months ago
Join this forum to discuss everything pertaining to the use of Esbriet in the management of PF. Ask questions, seek experiential advice or share your overall experiences with things like side effects, long- vs. short-term usage, dosage, medication costs and more.
- 3 days, 12 hours ago
Join this forum to discuss everything pertaining to the use of Ofev in the management of PF. Ask questions, seek experiential advice or share your overall experiences with things like side effects, long vs. short term usage, dosages, medication costs and more.
- 1 day, 17 hours ago
Canadians Living with Pulmonary Fibrosis
Canadians have notable differences in healthcare and thus, in the treatment of IPF/PF. This group is for Canadian patients and caregivers (immediate family members or spouses) supporting someone living with IPF/PF. Join the discussion to find information on local support groups, discuss treatment options, medical facilities and more as it pertains to Canadian patients living with IPF/PF.
- 2 days, 21 hours ago
Pulmonary Fibrosis Awareness & Advocacy
This forum is designed for everyone in the PF community. Whether you are a patient, caregiver, researcher, fundraiser or advocate, you are welcome here and we're glad to have you! Please feel free to share your ideas on raising awareness for PF, fundraising initiatives and any PF-related discussion topics or questions you might be thinking about.
- 7 hours, 53 minutes ago
PF Caregivers, Family Members & Spouses
This space is for those caring for a loved one with Pulmonary Fibrosis to connect. Join to discuss topics that pertain to being the sole care provider(s) for your loved one in the comfort of others who truly understand. In the presence of other caregivers only, this is a space to share your experiences and ask questions.
- 5 months, 3 weeks ago
Living with Pulmonary Fibrosis: 50+
Connect with others living with Pulmonary Fibrosis in the same life stage as you, and discuss issues such as: limited mobility, exercise, tips & tricks of managing daily living with oxygen, planning for end-of-life care (as applicable), pain management and more.
- 1 week, 2 days ago
Pre/Post Lung Transplant
This group is for patients living with Pulmonary Fibrosis who have been referred to a lung transplant program, or who have received their new gift of life. Many patients know that treatment for PF will include a lung transplant, however, this group is for those in the active stages of pursuing transplantation or who have received new lungs. Discussions will include: medication management, pre/post physical transplant care, caregiver support and the many ways that transplant can impact a patient and their family, including: mental, social, emotional and psychological.
- 2 weeks ago
Young Adults Living with Pulmonary Fibrosis (40 & Under)
Connect with others living with IPF/PF in the same life stage as you, and feel connected/less isolated when discussing things such as: introducing your disease in a new relationship, intimacy and fertility, facing mortality as a young adult and helping others understand your disease.
- 3 hours, 38 minutes ago
Upcoming Medical Appointments: Q&As
This forum is designed to give all PF patients a place to connect prior to, or following their medical appointments. Please join the discussion to ask questions, seek advice or share your feelings pertaining to upcoming appointments with other patients who can directly relate.
- 4 days, 15 hours ago
- Healthy Recipe Sharing