Keith Emery

Hi Maria, I too started Ofev in January 2023, now into week 10. I have nausea and vomiting together with Diarrhoea several times each week and lots of wind/gas. My Consultant Pharmacist assures me that through time this will pass. I am determined to stay with the drug as its benefits outweigh the drawbacks i.e. slowing of the progress of the…[Read more]

Hello from Scotland,
I was diagnosed with IPF in September 2015 after a bout of pneumonia. All was well during the ensuing years, until our holiday in the Algarve, Portugal, in June 2022. I contracted Covid 19 over there and became seriously ill and hospitalised for a month, as the Covid 19 had ravaged my pulmonary fibrosis and doubled its size.…[Read more]

I was diagnosed with IPF in October 2015. Fortunately, it was progressing slowly and my breathing range was just a little below normal. However, in June 2022 we went on our long-awaited holiday (due to Covid 19 restrictions in previous years) to Portugal. Within two days after arrival, we were both struck down with Covid 19. My wife recovered…[Read more]

I have severe knee pain at night when in bed and occasionally during the day. I was diagnosed with IPF in September 2015. Covid infection has caused the scarring to double in size so I am now being treated with Ofev – just started

I was diagnosed in September 2015. I am 75 years young and still going strong, although I caught covid in June 2022 which added to the scaring significantly. I have now been approved for drug treatment to slow the progression down and apparently extend my life by up to a further three years.

I do get highly breathless when undertaking any…[Read more]

Charlene, I agree with you entirely. Rest does not help with my IPF breathing problem. Only if I become breathless through activity and need a few moments to recover, do I see rest as helping. I try to push myself when walking so that my lungs are exercised, although I probably can only walk 100 yards before having to stop to catch my breath.…[Read more]