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Keith Emery replied to the topic Questions about Ofev in the forum Using Our Forums 2 months, 2 weeks ago
Hi Maria, I too started Ofev in January 2023, now into week 10. I have nausea and vomiting together with Diarrhoea several times each week and lots of wind/gas. My Consultant Pharmacist assures me that through time this will pass. I am determined to stay with the drug as its benefits outweigh the drawbacks i.e. slowing of the progress of the…[Read more]
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Keith Emery replied to the topic Starting Ofev in the forum Ofev (Nintedanib) 2 months, 3 weeks ago
Hello from Scotland,
I was diagnosed with IPF in September 2015 after a bout of pneumonia. All was well during the ensuing years, until our holiday in the Algarve, Portugal, in June 2022. I contracted Covid 19 over there and became seriously ill and hospitalised for a month, as the Covid 19 had ravaged my pulmonary fibrosis and doubled its size.…[Read more] -
Keith Emery replied to the topic Covid causing pulmonary fibrosis in the forum Coronavirus (COVID-19) and Pulmonary Fibrosis 3 months, 3 weeks ago
I was diagnosed with IPF in October 2015. Fortunately, it was progressing slowly and my breathing range was just a little below normal. However, in June 2022 we went on our long-awaited holiday (due to Covid 19 restrictions in previous years) to Portugal. Within two days after arrival, we were both struck down with Covid 19. My wife recovered…[Read more]
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Keith Emery replied to the topic Synovitis of the knee in the forum Join the Discussion: Welcome to all PF/IPF Patients 4 months, 3 weeks ago
I have severe knee pain at night when in bed and occasionally during the day. I was diagnosed with IPF in September 2015. Covid infection has caused the scarring to double in size so I am now being treated with Ofev – just started
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Keith Emery replied to the topic Life span in the forum Diagnosis Information and General Questions 4 months, 3 weeks ago
I was diagnosed in September 2015. I am 75 years young and still going strong, although I caught covid in June 2022 which added to the scaring significantly. I have now been approved for drug treatment to slow the progression down and apparently extend my life by up to a further three years.
I do get highly breathless when undertaking any…[Read more]
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Keith Emery replied to the topic Why the Word 'Rest' Triggers Me in the forum Living with Pulmonary Fibrosis: 50+ 8 months ago
Charlene, I agree with you entirely. Rest does not help with my IPF breathing problem. Only if I become breathless through activity and need a few moments to recover, do I see rest as helping. I try to push myself when walking so that my lungs are exercised, although I probably can only walk 100 yards before having to stop to catch my breath.…[Read more]
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Keith Emery became a registered member 2 years, 1 month ago
Welcome to the PF forums Keith, we are happy to have you!