Pulmonary Fibrosis Symptoms, Diagnosis, Prognosis and Treatment

July 21, 2017July 21, 2017
Two Medical Centers Adopt ZappRx’s Digital Platform to Ease Prescription of Specialty Medications
News
ZappRx’s new digital platform for prescribing specialty medications, including therapies to treat pulmonary fibrosis, can now be used at ... Read more
July 20, 2017July 20, 2017
Esbriet, Ofev Safety Profiles in Routine Practice Similar to Clinical Trial Reports, Study Finds
Esbriet, News
Patients with idiopathic pulmonary fibrosis (IPF) prescribed Ofev (nintedanib) or Esbriet (pirfenidone) in real-world practice have shown ... Read more
July 20, 2017July 20, 2017
How Relationships Can Change with a Diagnosis of IPF
Columns, Younger than 30: Living with IPF, a column by Charlene Marshall
The body and mind can do such strange things in response to stress. More and more I am hearing ... Read more
July 19, 2017July 19, 2017
Samumed’s Candidate PF Therapy, SM04646, Found to Be Well-tolerated and Safe in Phase 1 Trial
News
Samumed’s nebulized inhalation solution SM04646, a candidate therapy to treat idiopathic pulmonary fibrosis (IPF), was found to be well-tolerated and to ... Read more
July 18, 2017July 18, 2017
Some Tips and Resources to Help Tackle Your Sleep Problems
Columns, Just Breathe...Compassionate Help for the PF Journey
Pulmonary fibrosis patients, like myself, have to deal with lots of symptoms and hardships on a daily basis ... Read more
July 17, 2017July 19, 2017
Social Media and My IPF Story: A Public to Private Journey
Columns, Younger than 30: Living with IPF, a column by Charlene Marshall
In my experience, online virtual support groups are growing — allowing conversations among people living with various sensitivities or intolerances, to those ... Read more
July 17, 2017July 17, 2017
Esbriet, Ofev Remain Only Effective IPF Therapies Though PRM-151 is Gaining Ground, Comparison Study Finds
Esbriet, News
Esbriet (pirfenidone) and Ofev (nintedanib) remain the most reliably effective treatments for idiopathic pulmonary fibrosis (IPF), according ... Read more
July 13, 2017July 13, 2017
Northwestern Researchers Find New Link Between Immune Cells and Pulmonary Fibrosis
News
A specific subpopulation of immune cells — known as monocyte-derived alveolar macrophages — was found to play an essential ... Read more
July 13, 2017July 13, 2017
What Do You Say? Responding to Awkward Statements and Stares
Columns, Younger than 30: Living with IPF, a column by Charlene Marshall
I have grown accustomed to using supplemental oxygen and often overlook people who stare at me, wondering about the ... Read more
July 12, 2017July 12, 2017
Researchers Start a Study of Lung Fibrosis in Patients With Hermansky-Pudlak Syndrome
News
Researchers from two Southern U.S. universities and a federal healthcare agency have begun a study of pulmonary fibrosis in ... Read more
July 11, 2017July 10, 2017
Patient Community Urges Writing to Representatives for Help
Columns, Just Breathe...Compassionate Help for the PF Journey
Pulmonary fibrosis patients have lots of unique medical needs, especially concerning obtaining medication and supplemental oxygen. A few weeks ... Read more
July 10, 2017July 10, 2017
The Balancing Act of Living with IPF
Columns, Younger than 30: Living with IPF, a column by Charlene Marshall
I have read many articles on young adults living with a chronic illness since being diagnosed with idiopathic pulmonary ... Read more

July 21, 2017July 21, 2017

Two Medical Centers Adopt ZappRx’s Digital Platform to Ease Prescription of Specialty Medications

ZappRx’s new digital platform for prescribing specialty medications, including therapies to treat pulmonary fibrosis, can now be used at two centers with expertise in respiratory conditions — Arizona Pulmonary Specialists and ... Read more

July 20, 2017July 20, 2017

Esbriet, Ofev Safety Profiles in Routine Practice Similar to Clinical Trial Reports, Study Finds

Esbriet, News

Patients with idiopathic pulmonary fibrosis (IPF) prescribed Ofev (nintedanib) or Esbriet (pirfenidone) in real-world practice have shown similar tolerability and adverse event profiles as those reported in large-scale clinical ... Read more

July 20, 2017July 20, 2017

How Relationships Can Change with a Diagnosis of IPF

Columns, Younger than 30: Living with IPF, a column by Charlene Marshall

The body and mind can do such strange things in response to stress. More and more I am hearing about the physical impact of stress on friends, colleagues and ... Read more

July 19, 2017July 19, 2017

Samumed’s Candidate PF Therapy, SM04646, Found to Be Well-tolerated and Safe in Phase 1 Trial

News

Samumed’s nebulized inhalation solution SM04646, a candidate therapy to treat idiopathic pulmonary fibrosis (IPF), was found to be well-tolerated and to cause no serious adverse effects in a Phase 1 trial of ... Read more

July 18, 2017July 18, 2017

Some Tips and Resources to Help Tackle Your Sleep Problems

Columns, Just Breathe...Compassionate Help for the PF Journey

Pulmonary fibrosis patients, like myself, have to deal with lots of symptoms and hardships on a daily basis because of our disease. One of those difficulties for me is ... Read more

July 17, 2017July 19, 2017

Social Media and My IPF Story: A Public to Private Journey

Columns, Younger than 30: Living with IPF, a column by Charlene Marshall

In my experience, online virtual support groups are growing — allowing conversations among people living with various sensitivities or intolerances, to those diagnosed with cancer, lung diseases, etc. It’s really interesting to ... Read more

July 17, 2017July 17, 2017

Esbriet, Ofev Remain Only Effective IPF Therapies Though PRM-151 is Gaining Ground, Comparison Study Finds

Esbriet, News

Esbriet (pirfenidone) and Ofev (nintedanib) remain the most reliably effective treatments for idiopathic pulmonary fibrosis (IPF), according to a study that used a time-course model to compare the effectiveness ... Read more

July 13, 2017July 13, 2017

Northwestern Researchers Find New Link Between Immune Cells and Pulmonary Fibrosis

News

A specific subpopulation of immune cells — known as monocyte-derived alveolar macrophages — was found to play an essential role in the development of pulmonary fibrosis (PF). This finding ... Read more

July 13, 2017July 13, 2017

What Do You Say? Responding to Awkward Statements and Stares

Columns, Younger than 30: Living with IPF, a column by Charlene Marshall

I have grown accustomed to using supplemental oxygen and often overlook people who stare at me, wondering about the young adult who seemingly cannot breathe. While I don’t seem ... Read more

July 12, 2017July 12, 2017

Researchers Start a Study of Lung Fibrosis in Patients With Hermansky-Pudlak Syndrome

News

Researchers from two Southern U.S. universities and a federal healthcare agency have begun a study of pulmonary fibrosis in people with the rare disease Hermansky-Pudlak syndrome (HPS). The objective ... Read more

July 11, 2017July 10, 2017

Patient Community Urges Writing to Representatives for Help

Columns, Just Breathe...Compassionate Help for the PF Journey

Pulmonary fibrosis patients have lots of unique medical needs, especially concerning obtaining medication and supplemental oxygen. A few weeks ago, I wrote two columns about my fight to get ... Read more

July 10, 2017July 10, 2017

The Balancing Act of Living with IPF

Columns, Younger than 30: Living with IPF, a column by Charlene Marshall

I have read many articles on young adults living with a chronic illness since being diagnosed with idiopathic pulmonary fibrosis (IPF). Some I can relate to, while others don’t resonate with ... Read more