Familial pulmonary fibrosis (FPF) makes up a notable portion of all cases of interstitial lung disease, disorders marked by scarring in the lungs, and tends to appear differently from non-familial versions of the disease, a large, multicenter study has found. While survival outcomes were similar between the two groups,…
Discussion
Storytelling is a learning tool as old as time. History is made up of eyewitness accounts and recollections of a certain time or place, often augmented by official records. I’ve seen discussions recently on social media and in the Pulmonary Fibrosis News Forums asking for people to describe the…
Discussion
Note: This column describes the author’s husband’s own experiences with anti-fibrotic medications. Not everyone will have the same response to treatment. Consult your doctor before starting or stopping a therapy. For those of you who haven’t read this column before, my name is Kylene, and my husband, Donnie, was diagnosed…
Becoming educated and informed about PF is a good first step. Here you’ll find general information about the disease, including diagnosis, symptoms, and causes.
It helps to know others have been where you are now. Here’s a collection of our columnists’ words of wisdom to help you along on your PF journey.
There is no cure for PF yet, but here you can find more information about current therapeutic approaches, as well as experimental treatments that are in the pipeline.
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