Finding Community Within the Chaos
Living through a pandemic means that people around the world are having new and uncomfortable experiences. Many, including me, are afraid. We fear for ... Read more
Updates
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NORD’s Advice on COVID-19: You’re Stronger Than You Think
First, the bad news: If you’re one of the 30 million or so Americans with a rare disease, you probably have lower immunity to ... Read more -
Final Approval Sought for Phase 2 Trial of Repurposed NP-120 for IPF
Algernon Pharmaceuticals announced that it submitted a request for the final approval needed to open a Phase 2 clinical trial in Australia evaluating NP-120 (ifenprodil), a repurposed ... Read more
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Study Links Bacteria-derived Protein Fragment with Acute Exacerbations in IPF
A protein fragment produced by bacteria commonly found in the lungs of people with idiopathic ... -
Engineered Cell Models Seen as Best for Capturing Living Lung Response
Engineered models of the lung and trachea replicate the cellular dynamics found in living ... -
Pandemic Protocols Show World How Post-transplant Paranoia Feels
Rare disease patients and caregivers have a lot to teach the world right now. ... -
IPF Patient Spearheads Lung Transplant Foundation to Help Others
At 3 a.m. on July 6, 2003, Miami resident Jeffrey Goldstein got a call ... -
NORD Partners with ‘Sing Me a Story’ for July 18–20 Living Rare Forum
The Living Rare, Living Stronger Patient and Family Forum, originally set for May 14–16 ... -
Focusing on the Good During the COVID-19 Pandemic
It’s hard to focus on anything other than the COVID-19 outbreak happening around the ...
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Aloperine May Protect Against Pulmonary Fibrosis in Mouse Model, Study Suggests
News
Treatment with plant-derived aloperine reduces the severity of lung injury in a mouse model of pulmonary fibrosis, a new Chinese study reports. The research, “Aloperine Protects Mice against Bleomycin-induced Pulmonary Fibrosis by Attenuating Fibroblast Proliferation and Differentiation,” was published ... Read more