Author Archives: Charlene Marshall

Why September Is Hard for Me as an IPF Patient

As a patient living with a chronic illness, I’ve become comfortable with people using clichés to try to comfort me. People naturally want to relate to others, but it’s often hard for someone who’s healthy to understand the experiences of a young adult who requires oxygen to breathe. One cliché…

Pulmonary Fibrosis Alters the Trajectory of Our Lives

Many significant milestones in life occur during young adulthood. Some may buy their first home, get married, and start a family, which is a typical trajectory. Unfortunately, idiopathic pulmonary fibrosis (IPF), a progressive and fatal lung disease, doesn’t care about typical trajectories. It unapologetically interferes with the lives of patients…

Technology Audit: An Updated List of Devices for Living With IPF

The Pulmonary Fibrosis News Forums offer a one-of-a-kind platform to learn about this life-threatening lung disease firsthand. Patients, caregivers, and professionals alike come together to discuss a plethora of topics pertaining to idiopathic pulmonary fibrosis (IPF). Many of those discussions focus on how to effectively manage the disease, and…

Life With Chronic Illness Brings Both Highs and Lows

Throughout their lives, many people experience an array of ups and downs. Days, months, or even years can be plagued with challenges that seem unfair. Conversely, people also can experience prolonged periods when things go well. Rare disease patients who frequently experience ups and downs caused by their illness know…

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