Living with pulmonary fibrosis is already a daunting challenge, but when coupled with a sleep disorder like sleep apnea, the burden becomes even heavier. Sleep apnea, a condition in which breathing repeatedly stops and starts during sleep, can significantly impact both sleep quality and overall health. For…
Buckle up. The past three weeks have been an emotional roller coaster for me. On a scale of -10 to 10, I’ve hit both extremes. I’m no stranger to emotion; some would say I wear my heart on my sleeve. During my journey I’ve had some huge emotional ups and…
The best-laid plans of mice and men often go awry. That line is adapted from a 1785 poem by Robert Burns titled “To a Mouse.” I had an entire month of columns planned for this Pulmonary Fibrosis Awareness Month, but that plan went awry. When I wrote…
My name is Sam. I was diagnosed with idiopathic pulmonary fibrosis (IPF) in January 2017, and I hate this disease. My life was extended by a bilateral lung transplant in July 2021, thanks to an unknown donor who gave me a gift for which the value cannot…
Before I was diagnosed with idiopathic pulmonary fibrosis (IPF) in January 2017, I had only one dietary restriction: cucumbers, which were my nemesis. I wasn’t allergic, but they gave me immediate and intense heartburn. At that time, I had no idea about the dietary restrictions imposed on lung-transplant…
Idiopathic pulmonary fibrosis (IPF) is a progressive lung disease, which means it worsens over time. Because there’s no cure, the goal is to try and preserve lung function for as long as possible. This may involve regular monitoring and other measures, such as pulmonary function testing, exercise,…
Last week, I participated in one of the most unique speaking opportunities I’ve had on my journey with pulmonary fibrosis. I was asked to provide a patient’s perspective to a caregiver support group. When I was diagnosed with idiopathic pulmonary fibrosis (IPF) in January 2017, it caught…
Living in Texas means facing an unpredictable climate. One minute, the skies are blue and it’s sunny, and the next, thunderstorms and tornadoes are rolling in without warning. I’ve lived in Texas all my life and still can’t keep up with the changes. Having pulmonary fibrosis (PF) doesn’t make…
Looking at the person sitting nearby, I’ll often say, “So what are you in for?” While to me the question is slightly reminiscent of a conversation between two inmates, that’s not the case in this example. This conversation starter also works at a transplant clinic. I was diagnosed with…
Living with a rare disease is expensive. While I agree with the cliches that “money can’t buy happiness” and “time is more valuable than money,” the limited financial aid available to patients stresses me out. When I was diagnosed with idiopathic pulmonary fibrosis (IPF) in 2016, I wasn’t thinking…
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