Columns

Why I’ve Used Multiple Models to Track My IPF Progression

When I learned that the prognosis for idiopathic pulmonary fibrosis (IPF) patients is about five years after diagnosis, I started wondering how my disease would progress. I didn’t think my progression would follow the usual, defined stages. I believed I would have an acute exacerbation and go directly from diagnosis…

Breaking the Chains and Taking Back Control

“But if these years have taught me anything it is this: you can never run away. Not ever. The only way out is in.” — Junot Díaz I have always been a social person. I need human contact and I have always enjoyed spending time with family and friends,…

Close Friends Can Provide Valuable Insight When We’re Anxious

Friendships can change when chronic illnesses like idiopathic pulmonary fibrosis (IPF) enter the picture. Some might struggle to understand a friend’s illness, needs, and limitations. And the friend with the illness might change too, depending on how they cope. However, I believe true friendships can withstand these challenges, and even…

Focusing on Wins for Pulmonary Fibrosis Awareness Month

You may have noticed that September is Pulmonary Fibrosis Awareness Month. Here at Pulmonary Fibrosis News, we’ve been running a social media campaign that showcases patients and their loved ones in our community. Additionally, the Pulmonary Fibrosis Foundation runs a yearly campaign encouraging advocates to “let the world know”…

Why September Is Hard for Me as an IPF Patient

As a patient living with a chronic illness, I’ve become comfortable with people using clichés to try to comfort me. People naturally want to relate to others, but it’s often hard for someone who’s healthy to understand the experiences of a young adult who requires oxygen to breathe. One cliché…

My Theory on How I Developed IPF

When I was diagnosed with idiopathic pulmonary fibrosis with dendriform ossification in 2014, it was the second time I had a medical condition with an unknown cause. Three years earlier, I developed blood clots and had two pulmonary embolisms. Again, a reason for them couldn’t be determined. These unknown…

Knowledge Is Power: A Recipe for Healthier Days

I am finally on the road to a better understanding of my disease, lymphocytic interstitial pneumonia (LIP), and the course it’s taken throughout my life. In my previous column, I mentioned that I would soon have my second visit with my new pulmonologist. During this visit, I finally got…

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