None of us enjoy being in the hospital. However, for a patient with pulmonary fibrosis, it is inevitable that you will have to spend time admitted to the hospital. I find hospital stays very overwhelming. I often feel overly emotional, but do not understand why I shed so…
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I have always enjoyed doing things on my own, and valued my independence while growing up. I want to continue to be as independent as possible for as long as possible. As a result, I find asking for help very difficult. This is partially due to not knowing how…
The best thing about the pulmonary fibrosis community Over the last seven months of writing this column, I’ve learned that pulmonary fibrosis patients are brave, kind and supportive to one another. This is also true of their caregivers. I love watching our community develop as we share…
As the weather gets warmer here in Canada and everything begins to bloom for another year, it means summer is just a few weeks away. Summer has always been my favorite season. I love the warmth it brings because I despise being cold. I also love the…
Throughout my childhood, adolescent years and most recently young adulthood, I have been my toughest critic. I openly admit to that, and have had a strong desire to always want to do things to the best of my ability. I will repeat an activity or task until I have…
Since being diagnosed with idiopathic pulmonary fibrosis (IPF), it has been interesting to observe how certain movie quotes seem to have much more meaning than they did prior to my diagnosis. I tend to watch movies these days seeking out characters who can relate to what it…
I try to stay positive while also being realistic about the hardships that go with using supplemental oxygen 24/7. But this week I’m irritated and worn-out from the hassles I deal with daily. Here’s me being real. I’m tired of: Having to fight with my insurance and…
When you are diagnosed with a life-threatening illness such as pulmonary fibrosis, it is inevitable that you will feel the need to ask some big questions. Dreaded questions like “Why me?” “Why did this have to happen?” “Am I going to die?” and “How long do I…
I started noticing a change in my vision about a year ago. I’ve had the same prescription for glasses and contact lenses for 20 years. I was diagnosed with pulmonary fibrosis almost three years ago, and didn’t notice any changes in my vision for…
Throughout this yearlong journey with idiopathic pulmonary fibrosis (IPF), to which I am an unwilling participant, I have often spoken with others about the benefits of having something positive to look forward to. Knowing something good is on the horizon helps in coping with this disease — whether…
