Columns

How COVID-19 Has Shifted People’s Lives and Habits

March 11 was the one-year anniversary of the World Health Organization declaring COVID-19 a pandemic. Since then, I’ve been reflecting. I’ve learned a lot this year about myself and others. The hardships we’ve all faced have shown many of us how resilient and adaptable we can be. Many of…

Finding Peace and Power With Breathing Exercises

Breathing exercises are an important part of pulmonary rehabilitation. These exercises help keep the lungs healthy and uphold the integrity of the muscles we use to breathe. Practicing these when you have pulmonary fibrosis helps your pulmonary system remain strong, which keeps your body healthy for longer and sets…

The Pandemic Is Stealing My Already Limited Time

After being diagnosed with a life-threatening lung disease like idiopathic pulmonary fibrosis (IPF), many patients reluctantly accept that their life span will be shortened. Even if we’re lucky enough to receive a lung transplant, it isn’t a cure, and it essentially swaps the management of one chronic illness for another.

My Age Prevents Me From Participating in Clinical Trials

Next month is the five-year anniversary of when I first heard the words “idiopathic pulmonary fibrosis.” I was diagnosed by a pulmonologist at a local respiratory care center, where I’d finally been referred after 13 months of dealing with persistent shortness of breath, dry cough, and fatigue. I try…

The Courage Crew Is Running for Rare Disease Day

I have a problem with inertia. The forces that get my engine firing seem to start late, work slowly, and then combust and burn all at once. It’s a long fuse to a full gas tank. Forget the spark plugs and the carburetor. Whether it is…

Rare Disease Day Brings Me Hope as a PF Patient

We talk a lot about the importance of finding and maintaining hope in the rare disease community. While I agree this is important, I also want to acknowledge it isn’t always easy while living with idiopathic pulmonary fibrosis (IPF), a rare and life-threatening lung disease that eventually steals your ability…