In a single month, I’ve had three vaccinations, three medical procedures requiring anesthesia, two lab tests, one dental appointment, one pentamidine treatment, one appointment at the pulmonary clinic, and one pulmonary function test. As I’ve noted before, life after lung transplant is busy with medical surveillance. I…
Amy Silverstein’s second memoir, “My Glory Was I Had Such Friends” (2017), left a lasting impression on me. It wasn’t just because of the way Silverstein’s devoted friends attended to her while she awaited a second heart transplant, or even how that story mirrored…
“Hello darkness, my old friend/ I’ve come to talk with you again/ Because a vision softly creeping/ Left its seeds while I was sleeping/ And the vision that was planted in my brain/ Still remains/ Within the sound of silence.” Those words are from the song “The Sound of…
Today, I’m wrapping up another trip around the sun. On Oct. 4, 1957, the day I was born, the former Soviet Union launched Sputnik 1, Earth’s first artificial satellite. I’ve often wondered if there’s any relationship between my birthday and my love of space. Astronomy was my science during my…
Have you ever read a book that totally resonated with you? One that reflects who you are and enables you to see yourself in the words? I love to read a variety of genres but tend to lean toward self-improvement, technical publications, and real-life stories. A longtime friend of mine, following…
When I was diagnosed with idiopathic pulmonary fibrosis in January 2017, I began to tackle the steep learning curve almost immediately. I may never reach the summit, but that doesn’t mean I’ve given up. There is always something to learn, and I acquire new knowledge on a regular basis.
In May, my mom, Holly, told me about a memoir she’d just finished reading by Amy Silverstein, a writer who had died of cancer the previous day. Silverstein attributed her impending death to a 35-year reliance on transplant-related medications following a heart transplant at age 25 and…
Sept. 12 is always an exciting day in our house. It’s the birthday of my wife, Susan, for one thing. And it’s also our wedding anniversary. While I won’t disclose Susan’s age for my safety, I can share that it’s our 13th anniversary. For more than half of our married life,…
At the beginning of this year, I was told to start pulmonary rehabilitation to help with my pulmonary fibrosis (PF). I was prescribed 12 sessions as an outpatient, which would take six weeks (two sessions a week) out of my life. I kept putting it off, always making…
Living with a chronic illness is a lot of work. Sometimes I liken it to a full-time job because it requires so much daily effort. Medication administration, doctor appointments, and symptom tracking are just a few responsibilities associated with disease management. Prior to my diagnosis of…
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