Columns

November 11, 2019November 13, 2019

Dealing with Assumptions About My Physical Capabilities

Columns, Younger than 30: Living with IPF, a column by Charlene Marshall

When I engage with the pulmonary fibrosis (PF) community online, I frequently hear about the difficulties of living with an invisible illness. Sometimes it feels nearly impossible to convey ... Read more

November 8, 2019November 6, 2019

Transplant Support Groups and the People You Will Meet There

Columns, Courage to Care - a column by Christie Patient

Learning that you or a loved one might need a lung transplant is scary. You probably have a lot of questions, and may wonder whether they are the right ... Read more

November 7, 2019November 5, 2019

Making Exercise Work for You as a PF Patient

Columns, Younger than 30: Living with IPF, a column by Charlene Marshall

We all know about the benefits of exercise and try our best to incorporate it into our lives. While engaging in physical activity is difficult when living with a ... Read more

November 4, 2019October 31, 2019

I’m Eagerly Anticipating PFF Summit 2019

Columns, Younger than 30: Living with IPF, a column by Charlene Marshall

I am passionate about professional development and ongoing learning opportunities. While I have always thought about these in the context of my education or career, I am looking forward ... Read more

November 1, 2019October 30, 2019

My Plan to Hold the Anxiety Monster at Bay

Columns, Courage to Care - a column by Christie Patient

Ah, November. Tis the season for declining mental health! The end of fall and beginning of winter always make me anxious. In the past, it was the start of ... Read more

October 31, 2019October 29, 2019

Living with IPF Has Shifted My Financial Priorities

Columns, Younger than 30: Living with IPF, a column by Charlene Marshall

Before I got sick, my life was pretty straightforward. I knew what I wanted to study in college, and I earned my bachelor’s and master’s degrees. And although I ... Read more

October 28, 2019October 24, 2019

A Powerful Trio for Managing Pulmonary Fibrosis

Columns, Younger than 30: Living with IPF, a column by Charlene Marshall

Managing a chronic illness is not for the faint of heart. Learning to live with idiopathic pulmonary fibrosis (IPF) is the hardest thing I’ve ever done. I applaud my ... Read more

October 25, 2019October 23, 2019

A Body and Its New Lungs: A Love Story

Columns, Courage to Care - a column by Christie Patient

It’s been seven months since my mom, Holly, had a double-lung transplant. She and the miracle organs that have been stitched within her are going strong. But their relationship ... Read more

October 24, 2019October 24, 2019

Q&A with a Pulmonologist: What IPF Patients Want to Know

Columns, Gonna Live My Life by Mark Koziol

After my single-lung transplant in December 2015, I was invited to participate in a panel of idiopathic pulmonary fibrosis (IPF) and lung transplant patients who had previously taken the ... Read more

October 24, 2019October 22, 2019

How I’m Managing Increased Breathlessness

Columns, Younger than 30: Living with IPF, a column by Charlene Marshall

For the third day in a row, I’ve been feeling angry with my body, particularly my lungs. I’ve been experiencing severe breathlessness. While I don’t have signs of a ... Read more