Columns

May 30, 2019May 29, 2019

Pulmonary Fibrosis Patients Live in a Constant State of Fear

Columns, Younger than 30: Living with IPF, a column by Charlene Marshall

Sadly, many patients living with a life-threatening illness are likely familiar with a magnitude of feelings, fears, and emotions. There is no instruction manual on how to navigate life-threatening ... Read more

May 29, 2019May 24, 2019

A Spore in the Grass: Protect Your Lungs from Aspergillosis

Columns, Gonna Live My Life by Mark Koziol

As an ex-college football player, I get goosebumps over the sweet smell of freshly cut grass in the fall — a sign that football season is upon us. It’s ... Read more

May 24, 2019June 3, 2019

Post-transplant Holidays and Milestones Are Causes to Celebrate and to Grieve

Columns, Courage to Care - a column by Christie Patient

In January 2018, I lost my cousin to lung cancer. It was at stage 4 by the time he was diagnosed, and his decline was rapid and unexpected. One ... Read more

May 23, 2019June 3, 2019

Wrongly Perceived ‘Perks’ of Having a Chronic Illness

Columns, Younger than 30: Living with IPF, a column by Charlene Marshall

An unfortunate reality of living with a chronic illness is that most people will never fully understand your experience. They can’t understand the complexity of living with a chronic ... Read more

May 22, 2019June 3, 2019

Post-transplant Life Includes the Constant Monitoring of Lab Tests

Columns, Gonna Live My Life by Mark Koziol

An integral part of my recovery from single-lung transplant surgery is the close monitoring of lab results. My case is even more interesting because I have autoimmune hemolytic anemia ... Read more

May 17, 2019May 20, 2019

My Mom’s Medical Crisis Brought Me to the End of Innocence

Columns, Courage to Care - a column by Christie Patient

Each person’s experience of having a sick parent is different. For me, it was relatively easy until my mom’s condition became a crisis. From the start, I refused to ... Read more

May 16, 2019May 23, 2019

Thinking Differently: Ways My Perspective Has Changed Post-diagnosis

Columns, Younger than 30: Living with IPF, a column by Charlene Marshall

Being diagnosed with any type of life-threatening illness will inevitably change a person. This is especially true when there is no link (i.e., genetic predisposition) or reason to think ... Read more

May 13, 2019May 10, 2019

How Do I Deal with Increasing Impatience Since My PF Diagnosis?

Columns, Younger than 30: Living with IPF, a column by Charlene Marshall

It is hard to admit that my chronic lung disease is having more than a physical impact on me. Idiopathic pulmonary fibrosis (IPF) is a relentless, cruel disease and ... Read more

May 10, 2019May 9, 2019

Positive Reflection Helps Cultivate Courage

Columns, Courage to Care - a column by Christie Patient

I named my column “Courage to Care” because I wanted to convey that it takes a lot of guts to be a caregiver. The moment I decided to take ... Read more

May 9, 2019May 7, 2019

Acceptance Is Part of the Pulmonary Fibrosis Journey

Columns, Younger than 30: Living with IPF, a column by Charlene Marshall

I vividly remember being told I had something called idiopathic pulmonary fibrosis (IPF). That day and conversation will be forever etched in my mind. I looked at the specialist ... Read more

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