Columns

February 28, 2020February 26, 2020

My Courage to Care as a PF Caregiver Makes Me Rare

Columns, Courage to Care - a column by Christie Patient

Feb. 29 is Rare Disease Day. Pulmonary fibrosis is one of the more than 6,000 known rare diseases. While PF may not have much in common with other diseases, ... Read more

February 27, 2020February 26, 2020

Am I Doing Enough to Bring Awareness to My Rare Diseases?

Columns, Gonna Live My Life by Mark Koziol

Rare Disease Day takes place on Feb. 29. BioNews Services, the parent company of this website, has taken on this initiative in an all-out effort to bring awareness to ... Read more

February 27, 2020February 25, 2020

Our Pulmonary Fibrosis Journeys Can Differ Drastically

Columns, Younger than 30: Living with IPF, a column by Charlene Marshall

I believe we all have an innate desire to feel connected with one another. It doesn’t matter whether that connection is when we’re empathizing with another patient plagued by ... Read more

February 24, 2020February 20, 2020

IPF Has Changed My Life: Celebrating Rare Disease Day

Columns, Younger than 30: Living with IPF, a column by Charlene Marshall

As I write this, I have been living with a rare disease for 1,413 days. On April 7, 2016, my life was transformed from an active young adult to ... Read more

February 21, 2020February 19, 2020

Emotional Ghosts Continue to Haunt Me

Columns, Courage to Care - a column by Christie Patient

Much of my young adult life was molded by my fears. I have talked about the effects in past columns, and how my mom’s hospitalization helped me find my ... Read more

February 20, 2020February 18, 2020

Pulmonary Fibrosis Complicates Small Tasks

Columns, Younger than 30: Living with IPF, a column by Charlene Marshall

When thinking of chronic lung conditions, you may visualize the use of supplemental oxygen or a person struggling with physically demanding tasks, such as walking up a flight of ... Read more

February 14, 2020February 12, 2020

Face-to-Face from Far Away: Tech to Help Weather the Wait

Columns, Courage to Care - a column by Christie Patient

When my mom, Holly, had an acute exacerbation of her idiopathic pulmonary fibrosis, she was transported to the University of California, San Francisco (UCSF) Medical Center. She spent the ... Read more

February 13, 2020February 12, 2020

Living Life in Incremental Steps: Sports, Cleveland, and Happiness

Columns, Gonna Live My Life by Mark Koziol

After a lung transplant, a patient should not partake in some tasks or continue with certain behaviors. For example, I used to love to do yardwork, such as gardening ... Read more

February 13, 2020February 11, 2020

The Reasons I Socially Isolate Myself

Columns, Younger than 30: Living with IPF, a column by Charlene Marshall

Idiopathic pulmonary fibrosis (IPF) is a cruel disease. Characterized by progressive scarring in the lungs that prevents oxygenation, IPF slowly steals a patient’s ability to breathe. There is no ... Read more

February 10, 2020February 6, 2020

Negotiating with My Emotional Self: Internal Struggles of an IPF Patient

Columns, Younger than 30: Living with IPF, a column by Charlene Marshall

Have you ever had to persuade yourself to do something? I often negotiate with myself to complete tasks I don’t want to do by rewarding myself with something enjoyable ... Read more

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