• Forum
    • Topics
    • Posts
    • Last Post
    • Hobbies & Projects
      This forum was created at the recommendation of one of our members, to showcase different hobbies and projects that have brought patients with IPF/PF joy since their diagnosis. Feel free to upload photos, share project details/ideas and ask questions. Please ask permission before using any photos of members' projects. Thank you.
    • 17
    • 289
    • 2 months, 3 weeks ago

      Marianne

    • Polls & Quizzes
      Test your knowledge of IPF and provide valuable insight to the patient community by having your say on a wide range of questions and issues pertaining to pulmonary fibrosis.
    • 11
    • 209
    • 6 months ago

      Ron

    • 30 Days of PF
      30 Days of PF is a social media campaign that coincides with PF Awareness Month. Every day in September, we will feature a story from someone in the PF community. You can follow the stories here.
    • 14
    • 23
    • 10 hours, 33 minutes ago

      Christie

    • In Loving Memory
      This forum is in recognition of those we’ve lost in this community. Feel free to share stories and words of encouragement about these individuals and their families.
    • 9
    • 32
    • 3 months ago

      George Manolakis

    • Wednesday Wins
      This is a space to share weekly highlights and generally positive things. What’s something good that happened to you this week? We all need a little motivation and a space to lift each other up. Most posts here will be shared on Wednesdays, but feel free to share anytime.
    • 4
    • 14
    • 2 months, 2 weeks ago

      Pete Besio

    • Diagnosis​ ​Information​ ​and​ ​General​ ​Questions
      This​ ​forum​ is​ ​designed​ ​for​ ​newly​ ​diagnosed patients​ ​and​ ​parents/caregivers​ ​who​ ​are​ ​looking​ ​for​ ​information​ ​about​ ​where​ ​to​ ​start​ ​in​ ​their pulmonary fibrosis ​journey.​ ​Here​ ​is​ ​where​ ​people​ ​can​ ​ask​ ​basic​ ​questions​ ​about​ ​pulmonary fibrosis ​and​ ​help​ ​each other​ ​through​ ​the​ ​initial​ ​diagnosis​ ​stage. Patients, caregivers, friends and family welcome.
    • 205
    • 2,323
    • 12 hours, 33 minutes ago

      Charlene Marshall

    • Caregivers and Spouses
      Inevitably, pulmonary fibrosis affects caregivers and spouses as much as the patients, and this group is a unique circle of support solely for them! Join to discuss the emotional, social and physical impact of caring for someone with PF/IPF and explore coping techniques from others sharing the same experience. Share your strategies, and enjoy the comfort and company of others who know exactly how you are feeling as a caregiver of someone living with PF/IPF.
    • 34
    • 170
    • 5 months ago

      Christie

    • Research and Development
      This group unites PF patients, caregivers, researchers and medical professionals in a platform to discuss the latest research and medical advances related to PF. Information shared in this group is public and therefore can be read, shared and discussed by all members. Everyone's contributions are welcome and encouraged.
    • 108
    • 181
    • 8 months, 1 week ago

      Charlene Marshall

    • Esbriet (Pirfenidone)
      Join this forum to discuss everything pertaining to the use of Esbriet in the management of PF. Ask questions, seek experiential advice or share your overall experiences with things like side effects, long- vs. short-term usage, dosage, medication costs and more.
    • 20
    • 675
    • 1 month ago

      George Beck

    • Ofev (Nintedanib)
      Join this forum to discuss everything pertaining to the use of Ofev in the management of PF. Ask questions, seek experiential advice or share your overall experiences with things like side effects, long vs. short term usage, dosages, medication costs and more.
    • 28
    • 729
    • 11 hours, 27 minutes ago

      Hans M. Fink

    • Canadians Living with Pulmonary Fibrosis
      Canadians have notable differences in healthcare and thus, in the treatment of IPF/PF. This group is for Canadian patients and caregivers (immediate family members or spouses) supporting someone living with IPF/PF. Join the discussion to find information on local support groups, discuss treatment options, medical facilities and more as it pertains to Canadian patients living with IPF/PF.
    • 23
    • 201
    • 9 months, 2 weeks ago

      Vishal

    • Pulmonary Fibrosis Awareness & Advocacy
      This forum is designed for everyone in the PF community. Whether you are a patient, caregiver, researcher, fundraiser or advocate, you are welcome here and we're glad to have you! Please feel free to share your ideas on raising awareness for PF, fundraising initiatives and any PF-related discussion topics or questions you might be thinking about.
    • 80
    • 983
    • 3 days, 8 hours ago

      Robin Oakman

    • PF Caregivers, Family Members & Spouses
      This space is for those caring for a loved one with Pulmonary Fibrosis to connect. Join to discuss topics that pertain to being the sole care provider(s) for your loved one in the comfort of others who truly understand. In the presence of other caregivers only, this is a space to share your experiences and ask questions.
    • 3
    • 3
    • 4 months, 4 weeks ago

      Christie

    • Living with Pulmonary Fibrosis: 50+
      Connect with others living with Pulmonary Fibrosis in the same life stage as you, and discuss issues such as: limited mobility, exercise, tips & tricks of managing daily living with oxygen, planning for end-of-life care (as applicable), pain management and more.
    • 130
    • 1,293
    • 1 week, 4 days ago

      Marianne

    • Pre/Post Lung Transplant
      This group is for patients living with Pulmonary Fibrosis who have been referred to a lung transplant program, or who have received their new gift of life. Many patients know that treatment for PF will include a lung transplant, however, this group is for those in the active stages of pursuing transplantation or who have received new lungs. Discussions will include: medication management, pre/post physical transplant care, caregiver support and the many ways that transplant can impact a patient and their family, including: mental, social, emotional and psychological.
    • 43
    • 368
    • 4 days, 7 hours ago

      Ronald Cole

    • Upcoming Medical Appointments: Q&As
      This forum is designed to give all PF patients a place to connect prior to, or following their medical appointments. Please join the discussion to ask questions, seek advice or share your feelings pertaining to upcoming appointments with other patients who can directly relate.
    • 20
    • 206
    • 2 weeks ago

      Denise Stogdill

©2021 KLEO Template a premium and multipurpose theme from Seventh Queen

CONTACT US

We're not around right now. But you can send us an email and we'll get back to you, asap.

Sending

Log in with your credentials

or    

Forgot your details?

Create Account